Lost & Found: What Brain Injury Survivors Want You... - Headway

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Lost & Found: What Brain Injury Survivors Want You to Know

ErinSAH
ErinSAH
11 Replies

I came across this article on the brain and spine foundation Facebook page and thought I’d share it. I’m over 5 years past my BI and one of the biggest things I still deal with on a daily basis is other people’s lack of knowledge and understanding. I look fine, therefore to them, I am....

If anyone is finding it difficult to communicate their difficulties, showing this article might help. And also for those who know someone with a BI.

brainline.org/article/lost-...

11 Replies
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steve55

this is something that should be printed out and people should take to their pip or esa f2f.

a very interesting piece.

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ErinSAH
ErinSAH
in reply to steve55

Great, so glad it might help 😊

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paxo05

Hi Erin.

Thanks for the link. I have downloaded the info to use when I finally get my esa assessment. Hopefully it will help them understand a little better......You never know it may enlighten them.

Pax

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ErinSAH
ErinSAH
in reply to paxo05

Exactly, it’s not just the brain injury to deal with, it’s the sheer lack of knowledge of its impact. Glad it’s of use and hope it helps 😊

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magdolna

Thank you. This is a very good article.

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Alice5

Thankyou for posting this article. So helpful and accurate. It states so many issues my son struggles with that others, including me at times, don't understand because he looks 'fine.'

It could even be my son talking as we've had these discussions often.

I'm going to print it out as a reminder to me, and to raise awareness with others. It may be helpful for his children too.

Really helpful, thankyou...

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ErinSAH
ErinSAH
in reply to Alice5

Hi Alice,

I’m so glad it has helped, when I read it, it was like me talking and trying to explain myself to others, especially in the early years after my brain haemorrhage. I wish I’d had this to show my friends, family and my boyfriend, as it’s so difficult and exhausting to explain and put into words why and how I feel.

Hope everything goes well with your son x

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Alice5

Thankyou, I think you had a SAH the same as my son. Hope you are ok too x

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ErinSAH
ErinSAH
in reply to Alice5

Thank you x

I was 29 and just at the start of my career taking off. I’m doing well, much much better as time goes on.

Hope all is well with your son too x

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steve55

my brain injury was the result of a stroke at the age of 52.

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Hidden
Hidden

That is a fantastic article! Thank you for sharing.

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