Post traumatic seizure Pain

[D0v3]

Does anyone else on here suffer from chronic seizures that cause neuropathic pain in their feet? If so how do you deal with it without medication? It's making my life a misery!

Dave

[Danslatete]

No sorry but I got lyrica or pregablin for neuropathic pain. It helps make it bare able though its not a cure.

[D0v3 in reply to Danslatete]

Hi I've been on pregabalin and gabapentin before but I had awful side effects. Do you mind if I ask what dosage your on? I was on 600mg per day.

Thanks

Dave

[Danslatete in reply to D0v3]

200mg morning and night finding the right balance is hard. I had 300mg 3 times a day with gabapentin, but at its highest I was on a ridiculous amount.

I use the pregablin as side effects re less and at the dose that gives me the least side effects. I also have tens and opiate based pain medication. I get acupuncture too on NHS from pain clinic. It helps me sleep.

[D0v3 in reply to Danslatete]

Hi my GP is reluctant to give me pregablin because it's more expensive to purchase so he always recommends gabapentin. He says it does the same job.

Cheers

Dave

[Danslatete]

But if the tablets work and give less side effects then it is a better medication. I was changed from amytriptyline to nortriptiline to lessen side effects, both are more expensive but they allowed me to function much better. I'm not sure why they do this due to money. Surely it should be down to what works well without needing more medication to counter the side effects. I really don't get it.

Obviously if the drugs don't work or effects make things worse rather than better then don't take them then, that would make more sense.

[D0v3]

Thank you for your feedback.

Dave

[hayabusa]

I get massive shooting pains mostly in the toes of my left foot and over the last year in the outside half of both hands. It has me climbing the walls.

It just starts and lasts a few minutes up to an hour and for a few days. I have no idea when it's going to go off or go away.

I've not thrown my dinner tray up in the air yet!

It's quite surreal because there is no injury in my feet or hands.

I get my full spinal mri scan results in November this year. But no one seems to have considered the possibility of peripheral neuropathy.