13 years after the accident I have been diagnosed with:
Microscopic brain injury.
Hypoxia
Moderate to severe brain trauma
Complex brain injury.
PTSD
Memory problems.
Anger and confusion problems.
Cognitive issues
Advanced atrophying of the brain
Osteoarthritis of the spine, arms, hands, shoulders, pelvis and ankles.
An additional lumbar vertebrae.
Nerve impingement due to disc damage.
Mild scoliosis.
Pelvic tilt and twist.
Peripheral neuropathy. That's fun!!!
I've got some more scans and treatments coming up and tbh I wonder whether I should have kept quiet!! Lol
I just lived with all of it.
The peripheral neuropathy is entertaining! Well not much when you've got stabbing pains in your hands or feet that make you leap out of your skin or start up when you get in bed and trying to go to sleep. Anyone have neuropathy?
Took the NHS 7 years to find out I had an acutely broken left ankle in the accident.
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hayabusa
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Oh and my CADCAM custom made titanium hip is playing up, Oxford hip score: 19. Could be worse.
It's ten years old now. I was left for 3 years on elbow crutches with a continuously collapsing femur. My left leg was 4cm shorter than my right leg. I did a good impression of a crab
Yes I have the peripheral neuropathy, the idiopathic type and it's horribly embarrassing when you're trying to have a serious conversation with, say.............a banking advisor, or eating in a restaurant and the shooting pain causes your legs to shoot up in violent spasms.
This usually results in others jumping in shock then laughing nervously, but it just isn't funny ; it's sooooo painful ! And it happens with no warning, completely out of the blue.
Vitamin B seems to have calmed it presently (fingers crossed).
You cannot imagine so much pain where there is no injury?
If I was with you, I'd be rolling round the floor laughing. It's what we do, we laugh about these things. My dinner tray nearly launches into the air when my left goes off!! Lol lol
I have the same symptom, but nobody has diagnosed it as this. As the above wow the NHS found a microscopic thingy. My scan has been viewed by about 5 different professionals and different diagnoses are given.
I was a 23 stone powerhouse at the time. Lifetime of physical contact sports, cycling and gym work.
After a chopper ride to casualty, then surgery and my first night on the trauma ward, the nurses asked me what bike I was riding, it was my first Hayabusa. They said if I had been a smaller guy on a small bike, I would have died on impact.
they said something similar about the fingers on my left hand when I cut them off with a circular saw - if it hadn't been for riding a bike they wouldn't have had enough muscle and nerves to stitch back and they would be in the bin now and I would only be able to count up to 8 - 6 fingers and 4 halves
For your tilted hip etc I would suggest getting in touch with the Association of McTimoney-Corley spinal therapists...their treatment is definitely not of the bone cracking type and they treat/correct your entire musculo-skeletal system, the tilted hip, scoliosis and miss-aligned vertebra thereby releasing pressure on nerves. They can be contacted at 16 Tower Hill, Witney, Oxfordshire, OX28 5ER
Because I use the right hand side of my body for srength and control, the left is weak where most of the damage is. This of course causes imbalance and pain.
I will let you know what they have to say. Thanks again.
The private physio the insurance paid for (I had physio for 6 years) was a good physio and a chiropractor too. His name is Andy Roberts in Northampton. I recommend him throuoghly to anyone.
He works with sports professionals and a couple of strong men competitors.
The NHS physio's are a one size fist all approach and they are very constantly surprised at the strength I have even now with injury. But I need a more specialised physio rather than a general physio, but on the NHS.
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