So far this year.....: 13 years after the accident I... - Headway

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So far this year.....

hayabusa profile image
14 Replies

13 years after the accident I have been diagnosed with:

Microscopic brain injury.

Hypoxia

Moderate to severe brain trauma

Complex brain injury.

PTSD

Memory problems.

Anger and confusion problems.

Cognitive issues

Advanced atrophying of the brain

Osteoarthritis of the spine, arms, hands, shoulders, pelvis and ankles.

An additional lumbar vertebrae.

Nerve impingement due to disc damage.

Mild scoliosis.

Pelvic tilt and twist.

Peripheral neuropathy. That's fun!!!

I've got some more scans and treatments coming up and tbh I wonder whether I should have kept quiet!! Lol

I just lived with all of it.

The peripheral neuropathy is entertaining! Well not much when you've got stabbing pains in your hands or feet that make you leap out of your skin or start up when you get in bed and trying to go to sleep. Anyone have neuropathy?

Took the NHS 7 years to find out I had an acutely broken left ankle in the accident.

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hayabusa profile image
hayabusa
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14 Replies
hayabusa profile image
hayabusa

Oh and my CADCAM custom made titanium hip is playing up, Oxford hip score: 19. Could be worse.

It's ten years old now. I was left for 3 years on elbow crutches with a continuously collapsing femur. My left leg was 4cm shorter than my right leg. I did a good impression of a crab

Phat01 profile image
Phat01

Gotta admit it's impressive the NHS found a microscopic brain injury ;-)

hayabusa profile image
hayabusa in reply toPhat01

I think it's impressive they found a brain!!

cat3 profile image
cat3

Yes I have the peripheral neuropathy, the idiopathic type and it's horribly embarrassing when you're trying to have a serious conversation with, say.............a banking advisor, or eating in a restaurant and the shooting pain causes your legs to shoot up in violent spasms.

This usually results in others jumping in shock then laughing nervously, but it just isn't funny ; it's sooooo painful ! And it happens with no warning, completely out of the blue.

Vitamin B seems to have calmed it presently (fingers crossed).

hayabusa profile image
hayabusa in reply tocat3

It's mad isn't it!! But it's slightly funny too.

You cannot imagine so much pain where there is no injury?

If I was with you, I'd be rolling round the floor laughing. It's what we do, we laugh about these things. My dinner tray nearly launches into the air when my left goes off!! Lol lol

Its just unreal the pain :-D

Sem2011 profile image
Sem2011

I have the same symptom, but nobody has diagnosed it as this. As the above wow the NHS found a microscopic thingy. My scan has been viewed by about 5 different professionals and different diagnoses are given.

sospan profile image
sospan

Snap :-)

Brain Injury with all the memory, cognitive, emotional issues that come with it

Broken sinus

broken nose

Left ear 1 inch smaller and malformed at birth

damaged left eye

Broken Jaw

Broken neck

Compressed upper neck

Both shoulders damaged

Right Collar bone

Right elbow doesn't rotate properly

Broken right arm

Nerve damage three fingers right hand

Chronic arthritis / rheumatism thumb

Right arm 6 inches longer than left

Broken left arm

Severed four fingers left hand - 8 plastic joints with nerve damage

Broken all ten fingers multiple times

stab wound left hand

Broken and paralysed breast bone

limited cartledge left knee with enamel removed from bone where it grates together

Cruciate ligament damage in both knees

chips in right shin

Broken right ankle

broken toes multiple times

50+ years of an active life and playing too hard.

Oh and now going bald :-(

hayabusa profile image
hayabusa in reply tosospan

That took a very long time to scroll down the page !

Very much the same here 50+ years of a very active life !!

It would have carrried on if someone hadn't batted me off the road when I was 41.

The other injuries are:

Acutely broken left ankle (Undiagnosed until 7 years post accident). Got loose bone fragments in there.

Multiple broken and misaligned breakages on ribs to right hand lower back area (Still painful now).

Body scarring !! (Why I keep covered up outdoors)

Migraines, ice pick headaches.

Hyper senstivity of my scalp with chornic headaches

Left leg still 1/2" shorter than the right leg and left foot turns inwards.

Early onset COPD.

Poor pelvic control for walking.

Balance problems, I fall over easily.

Sciatica down left hand side.

Numbness in left foot and left thigh.

Hyper senstiivity around my mouth.

Sensations of things being stuck to the underside my left foot or wire cutting into the toes.

Lack of co-ordination, I break loads of crockery and glasses. We have the biggest collection of mismatched crockery outside of the charity shops.

From having 20/20 vison prior to the accident my eyesight has crumbled. Common after a major impact.

Massive shooting pains on the outside half of both hands.

Massive shooting pains in left foot.

Urological problems.

Constant chronic pain all through my body and new temporary areas of bad pain every day.

Personality change.

NDE in 2001 between room for spinal block and operating theatre. Nearly let me go they did !

Past:

Broken fingers and thumbs from martial arts contact fighting (A longgggg time ago)

Broken nose several times through figthing.

Broken elbows. Both at the same time.

Head impact in first bike smash 1976.

Left knee ligamant damage same bike smash 1976.

Scars on arms and hands from working.

Scar on left temple from building site accident. Got smacked with a putlog.

I smoked ciggies from 13 to 25 stopped for life.

Drink dependent on and off from 17 to 40. Total abistinance for 14 years and all the better for it.

No illegal drug use.

But as you say, I've had a life !

Someone made me stop. A forced retirement.

sospan profile image
sospan in reply tohayabusa

Yep its a wonder we have both got this far. As the song goes - I get knocked down but I get up again, nothing going to keep me down..

hayabusa profile image
hayabusa in reply tosospan

I was a 23 stone powerhouse at the time. Lifetime of physical contact sports, cycling and gym work.

After a chopper ride to casualty, then surgery and my first night on the trauma ward, the nurses asked me what bike I was riding, it was my first Hayabusa. They said if I had been a smaller guy on a small bike, I would have died on impact.

Fair nuff!

sospan profile image
sospan in reply tohayabusa

they said something similar about the fingers on my left hand when I cut them off with a circular saw - if it hadn't been for riding a bike they wouldn't have had enough muscle and nerves to stitch back and they would be in the bin now and I would only be able to count up to 8 - 6 fingers and 4 halves :-)

hayabusa profile image
hayabusa in reply tosospan

Being strong and fit helps with recovery after major accidents.

I am about as fit as a Greg's sausage roll now.

allright profile image
allright

For your tilted hip etc I would suggest getting in touch with the Association of McTimoney-Corley spinal therapists...their treatment is definitely not of the bone cracking type and they treat/correct your entire musculo-skeletal system, the tilted hip, scoliosis and miss-aligned vertebra thereby releasing pressure on nerves. They can be contacted at 16 Tower Hill, Witney, Oxfordshire, OX28 5ER

hayabusa profile image
hayabusa in reply toallright

Thanks for that, I am not that far from Oxford.

I will certainly call them later.

Because I use the right hand side of my body for srength and control, the left is weak where most of the damage is. This of course causes imbalance and pain.

I will let you know what they have to say. Thanks again.

The private physio the insurance paid for (I had physio for 6 years) was a good physio and a chiropractor too. His name is Andy Roberts in Northampton. I recommend him throuoghly to anyone.

He works with sports professionals and a couple of strong men competitors.

The NHS physio's are a one size fist all approach and they are very constantly surprised at the strength I have even now with injury. But I need a more specialised physio rather than a general physio, but on the NHS.

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