I HAD AN ICH IN 1997 LEFT ME WITH UNBEARABLE HEAD PAIN. NO DRUG EXCEPT A TRIPTAN WORKS SO NEUROLOGIST SUGGESTED BOTOX - I HAVE 33 INJECTIONS PER SESSION ONCE EVERY 4 MONTHS. SEEMS TO HAVE HAD A LIMITED SUCESS. THIS IS THE MAXIMUM DOSE HE'LL GIVE ME. ARE THERE ANY OTHER THINGS I CAN DO - ANY HERBAL, HOMEOPATHIC REMEDIES ETC ETC, I'LL DO ANYTHING SHORT OF DECAPITATION ALTHOUGH SOMETIMES THIS SEEMS LIKE A GOOD OPTION!
HAS ANYONE HAD BOTOX INJECTIONS IN THE HEAD FOR CH... - Headway
HAS ANYONE HAD BOTOX INJECTIONS IN THE HEAD FOR CHRONIC HEAD PAIN?
I had Botox injected into my eyes to correct som of the double vision I had. I had no idea I was used for head pain! I hope it helps you.
Did you just need the one session?
I had it a few times. Not nice but it did help
It's just that I had it in my foot, many years ago and managed to remember, that its effect is temporary.
I never thought of that. I suppose that's why people having it for cosmetic things have to have it re-done so often.
Hi thanks for reply. Sadly I have been having it for about 2 years in varying doses & intervals, we've settled on 200 units once every 4 months for the time being. Still trying to see if it really works!
That must have been horrific. I don't think they've been doing it for brains for very long, when I started it 2 years ago the neuro said it was fairly experimental. I just love being a guinea pig, not! You have a very clever name, my bleed really was dans la tete!!
Thanks, it was not very pleasant. It's a very fine needle that they thread around the back of the eye to the muscles. It feels like your eye is being pushed forward when they put the stuff in. My injury is in my head, literally. It really is a hidden problem.
How ghastly. My ICH is truly hidden too. Apparently I have a golf ball sized scar on my temporal lobe. Because I don't have a plaster cast or crutches or something visible people don't think there is a problem - they can't see the scar or the pain & epilepsy., I was left partially blind but was told that it was a concentration problem & depression. Thank God for the optician who found the blindness
& after a grand mal seizure I was finally sent to the neurologist. Even now after nearly 16 years I when I'm really poorly I feel rather like a walking brain haemorrhage rather than a person. Maybe I should wear a T shirt saying I 'm not mad I'm injured dans la tete!!
Sorry - I have no positive advice (would be hard for even a medical professional without far more info) but I'd be surprised if there aren't some herbals worth a go at least, especially if they have have some anti-inflammatory properties...
One thing I will point out is that NICE does not currently recommend homeopathy for the treatment of ANY condition because there is utterly no scientific or empirical reason to suppose it works as anything other than placebo. Frankly I would view advice from anyone who recommends homeopathics to you with extreme caution (runs for cover...!)
I hope some more promising advice turns up for you,
Bards
Hi thanks for your reply. I am always very sceptical about all these homeopathic remedies etc but I'm clutching at straws a bit. I appreciate your advice