Just looking to see if anyone has any advice / can offer any reassurance on my current situation!
Long story short......3 years ago I suffered a subarachnoid haemorrhage and have since recovered reasonably well. However off of the back of that I was diagnosed with a rare and complex spinal AVM which has remained untreated due to the size / location and nature of it.
This unfortunately continues to create ongoing pressure at the base of my brain and I suffer with a lot of extreme headache / migraine type pain along with dizziness and neck stiffness.
I've also had a query made by one neurologist over a diagnosis of something called Paroxysmal Hemicrania which they believe is adding to the pain and is effectively a condition caused as a result of the embolization surgery on the day of my haemorrhage.
Due to the levels of pain its become difficult to find a medication that works without nasty side effects and also difficult to maintain a normal daily life at times.
I am still trying to work full time and do all the things that normal social people do! (easier said than done) but am failing most of the time.
So it has now been suggested that they may try to use a series of Greater Occiptal Nerve injections into the occipital nerves at the base of the skull to try to block these pain signals to help with the pain.
As far as I have read this is something usually used in the case of extreme migraine sufferers but I've not been able to find any literature anywhere of it being used on anyone following a BI or Haemorrhage. So I'm feeling very reluctant to go for it as the procedure itself can be a bit of an ordeal and the effects may only last temporarily...... on balance I cant decide if this has the potential to make things worse as opposed to better as the treatment has such a mixed bag of reviews?!
Just wondering if anyone else has any experience with this type of treatment at all?