Had appointment : So I saw my GP today... - Haemochromatosis ...

Haemochromatosis Society UK

580 members138 posts

Had appointment

MrsO2510 profile image
1 Reply

So I saw my GP today.

He said my results (posted in previous email) show I am no longer anaemic as it's now 12.7 after my iron infusion a few weeks ago. I asked if 12.7 was high enough considering I am have extremely heavy periods. But agreed we would just 'monitor' he said B12 didn't need injections either.

I had to really push for an explanation of other results and now he's testing for myeloma on the back of those results. Not a great day 😞

Written by
MrsO2510 profile image
MrsO2510
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Madlegs1 profile image
Madlegs1

I would consider 12.7 marginal given your circumstances and history. You can take the oral B12 if you think it helps.

Iron is measured in 3 different ways. Hgb ( your 12.7) is the accessible iron for making red cells. Ferritin ( shouldbe around 70- 100) is stored iron- too much is dumped into organs which may be damaged- eg Hemocromatosis.

And then there is another iron measurement - usually about 20- 50 - which I don't understand.

Hopefully someone with more knowledge will come in here!

That IDI site has a lot of good info on it.

Cheers.

Not what you're looking for?

You may also like...

Diagnosed as Compound Haemochromatosis

I was made aware of this condition by a friend many months ago, possibly 18 months. I forgot about...
LaceyLady profile image

haemochromatosis

i have just had the results of a genetic test for hemo and have been told i have the his63asp...

Haematomchrosis update

Hiya all. Hope u r all keeping ok as not been on for a while. Well it's nice to have some good new...
Debbs73 profile image

Raised Ferritin Levels

Good Afternoon - I am wondering if I might ask for some help with regard to my Raised Ferriton...
Lemondrizz1 profile image

Possible HH and panicking a bit about damage to joints and other organs

Hi, I could use some advice, I may have HH (Dad is HH) and I am panicking that I may already have...
F1ona profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.