If so how are you being treated for it? Have you been recommended medication and a different GF diet? Do you also have it and Pernicious Anemia? Has it led to a NET carcinoid tumor?
"whereas autoimmune gastritis essentially is restricted to the gastric corpus and fundus. Individuals with autoimmune gastritis may develop pernicious anemia because of extensive loss of parietal cell mass and anti-intrinsic factor antibodies.
Patients with chronic atrophic gastritis develop low gastric acid output and hypergastrinemia, which may lead to enterochromaffin-like (ECL) cell hyperplasia and carcinoid tumors."
Also there is an ancient Greek plant, that may be of interest called gum mastic or sometimes mastic gum which usually is purchased in capsule form and you take it for 30 days without a gap - it kills off H Pylori - is useful and healing for any problem of the stomach and intestines - and yes I have taken it not for the above problem - but I can vouch for it - it is like a wonder supplement and has unbelievable healing properties. I bought mine from Holland & Barrett as I wanted to be sure to get a pure version - it's very expensive - but I'd buy it again if I felt the need.
Another healing plant that I use when I need it is Aloe Vera juice ... also an internal healing plant.
Pernicious Anemia brings back memories - I once new a ward sister, a very long time ago. She lived to be well into her nineties and would often tell me pieces of information. She had a sister going back before 1920 who nearly died from pernicious anemia. They had no cure then but their family doctor recommended that she ate raw liver every day and it cured her. I wouldn't suggest anyone here tries raw liver now though - can't imagine how dreadful that would taste but it is full of B12 which is stored in the livers of all animals - even when our blood may be short of it we often have some to spare in our livers. So besides the obvious of having B12 supplements - it might be an idea to try to have liver as often as possible - chicken livers are very mild and cheap and exceptionally easy to digest. I'm not offering much help here but - perhaps better than nothing at all. xx
All very interesting Lynxcat, is this mastic gum any relation to Arabic gum which's is good for Kidney disease.
As for the original question is it related to Lymphoma, which I know can be realted to CD.
So all I can say is I am very sorry that you feel the need to ask about this Fiona. And here's a link to the UK charity for lymphoma and related issues, it may be of some interest to you:
I think you have to be careful about Arabic gum - it is I believe in some circles a slang for Mastic gum - but it can be an entirely different substance - therefore is best purchased as Mastic gum or Gum Mastic occasionally spelt with a K. I first read about it probably twenty years ago and used it around 8 to 10 years ago - had chronic gut pains (may be the start of CD may be not - I don't suppose I will ever know - but amazingly it healed me and the pain completely disappeared ... have tried never to forget the name of it in case I might ever need to take it again. It really was like magic. Some conditions require a maintenance dose to be taken after the complaint has been sorted out according to the bottle of capsules that I purchased at the time - the capsules are perhaps the easiest way of taking it but are over £20 for a month's supply.)
"In recent years, university researchers have provided the scientific evidence for the medicinal properties of mastic. A 1985 study by the University of Thessaloniki and by the Meikai University discovered that mastic can reduce bacterial plaque in the mouth by 41.5 percent. A 1998 study by the University of Athens found that mastic oil has antibacterial and anti-fungal properties. Another 1998 University of Nottingham study, published in the New England Journal of Medicine, claims that mastic can heal peptic ulcers by killing Helicobacter pylori, which causes peptic ulcers, gastritis, and duodenitis. Some in vivo studies have shown that mastic gum has no effect on Helicobacter pylori when taken for short periods of time.[9][10] However, a recent and more extensive study showed that mastic gum reduced Helicobacter pylori populations after an insoluble and sticky polymer (poly-ß-myrcene) constituent of mastic gum was removed and taken for a longer period of time. Further analysis showed the acid fraction was the most active antibacterial extract, and the most active pure compound was isomasticadienolic acid.[11]"
Hi Fiona GFG, I am replying in the hope that this pops up in your email. I am v interested in this subject. The problem may be that in the UK drs don't look for it unless there is pernicious anemia - whereas there is clearly a long run up to that in which there is severe malabsorption, and even the pa would be masked by anyone taking sublingual B12, as so many do these days.
If you get this, and if you were diagnosed with this, could you post? Many thanks.
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Has anyone ever seen Prof Marios Hadjivassiliou?
Recently diagnosed with celiac disease .
(I'm New!) Coeliac and just awaiting the results of my thyroid test - has anyone else been diagnosed with both conditions?
