Hi, I've just discovered Prof Marios Hadjivassiliou, thanks to Thurgolady. He was working out of the Sheffield Institute of Gluten-Related Disorders in 2013. Does anyone know if he is still there or, even better, has anyone here ever had a consultation with him?
I think I have a neurological form, or expression, of coeliac disease and I am unable to get any assistance from standard neurologists or my GP, none of whom believe in the possibility of this being an autoimmune problem. My condition has a name - trigeminal neuralgia - and a drug to 'treat' it (i.e. stop the pain, not cure it), so the medical profession is done with me, as in not interested, but I have uncovered a whole battery of autoimmune conditions in myself, which I believe are associated and strongly indicate a bigger autoimmune problem. Now, however, I am reaching the end point for tests that can be performed via my GP and it is getting very difficult to get the kind of specialist approach I need. Conventional gut-related coeliac tests are not particularly helpful to me, and as the Sheffield Institute of Gluten-Related Disorders is the only one of its kind I feel it may offer me the only help available.
If anyone has had any contact with him, or knows anything about how to approach him, I'd be most grateful. Thanks!