Hi, i am so glad i found this page!!!!! what an excellent community!!!!!!! I just started gluten free and only just found out about Gluten Ataxia, i have just actually been in hospital very unwell for 2 weeks, after going 4 times to ER where they ignored me and sent me home!!!!! the 5th time a doctor actually saw that i couldnt walk!!! and kept me in for testing, i had shaking, diizziness, unable to walk suddenly, i was bed bound, very weak, palpitations, muscle spasms, confusion speaking, not being able to say words, memory loss, also not being able to look directly at people, and having my eyes wander around, i was terrified in case i was losing my mind! it seemed to be associated with eating, i thought i was diabetic or something but that came back negative, they ran blood tests, mri of brain and spine, ct, nerve study, but couldnt find any explanation whatsoever, and discharged me, while the normal tests results were obviously great news for me, it left me no further forward, it was only one night in hospital i actually ate a digestive biscuit, boy did i pay for that!!! i was doubled up in pain shortly after eating, had sickness and diarrhea and a massive red itchy rash that spread all over my stomach and chest, luckily i took photos to show the doctors the next day and they ran some celiac bloodtests and ordered a endoscopy and colonscopy, im waiting on the biopsies coming back but i know myself i definately am intolerant to gluten, for years ive had itchy rashes and on and off diarreha, stomach pain, but these current symtpoms came on very suddenyl, ive since started eating gluten free, its quite hard as ive been eating gluten filled foods for years, so to have to stop and think before putting something in my mouth is new. but a small price to pay to feel well again! i really do hope to god that in the coming weeks i feel better and get back to my normal self as at the moment i cant do anything i cant even walk far which is shocking as a month ago i could walk fine? im house bound. I dont think many doctors have even heard of Gluten Ataxia, I would be very interested to hear back from anyone who has similar symtpoms and any advice thanks
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