100%gluten free

[Elder]

I was recently told to take gluten out of diet as suspect I have sporadic gluten ataxia,I also have thyroid trouble, insulin diabetic , nerve trouble so very anxious to avoid gluten completely .

[maidforit]

Hi Elder. What a lot of problems to deal with, I really feel for you. Have you been to see a dietician yet or had any other help or advice? The best place to start for coeliacs is coeliac.org.uk/ but I don't know if the advice on there should be any different for you. They do have a helpline that you could call and they should be able to advise you further.

I really hope that things improve for you on a gluten free diet.

[Hidden]

Hi Elder and firstly poor you and I am sorry for you. If you have sporadic gluten ataxia then the gliadin in gluten is affecting your brain so you would probably need to avoid all traces of gluten and avoid wheat derivatives which are classed as gf and safe for coeliac. Also coeliac eat traces of gluten in codex wheat starch barley malt and you could have a reaction to oat gluten. So I'd read food labels regardless of whether it says gluten free.

People who are wheat sensitive have to avoid artificial sugars made from wheat like dextrose. maltodextrin etc. Because they can also contain traces of gluten.

So I think that you need to see a nutritionist as a standard gluten free diet is below 20ppm of gluten which's 20mg of gluten per Kilogram and if the gliadin is crossing your blood brain barrier you will need to avoid these traces of gluten as well.

The good news is that it can be treated and it means that you have to avoid many processed foods so potentially you have the opportunity for a very healthy nutritious diet.

ataxia.org/events/internati...

Lastly Sept 25th is Ataxia awareness day. And good luck.

[FionaGFG Administrator]

Elder it's important to be tested for coeliac disease whilst you are consuming gluten. It's worth discussing a blood test for coeliac disease with your Dr if you haven't already as your symptoms plus having thyroid issues are common amongst coeliacs.