Strict Gluten Free Diet?

[pretender]

Can someone please explain what the term "Strict Gluten Free Diet means".

If it means you comply with the recognised gluten free diet then you are ingesting small amounts of gluten. I am personally "Free of Gluten" (FOG). Even the smallest amount of gluten from derivatives has a very laxative effect on me as well as the other problems it causes.

Gluten Free is a term used to indicate that the finished product may contain up to 20ppm of gluten in a kilo of finished product, this maybe considered very low but there are Coeliac's who do suffer from this small amount.

To state you have an allergy to gluten then you need to be assessed by an allergy consultant, Oral, Topical & Respiratory. But it is known that some Coeliac's react to airbourne wheat.

[DartmoorGuerrilla]

Hi Pretender, CD is not an allergy, the mechanism is totally different, therefore there is no rational basis for coeliacs avoiding topical exposure.

Airborne wheat is only an issue if it lands on food that you subsequently eat, or on your tongue, or on your hands and you lick your fingers.

[Lexy in reply to DartmoorGuerrilla]

Hi DartmoorGuerrilla - I find this confusing. I was diagnosed with Dermatitis Herpetiformis and have been informed that if you have DH then you have CD. I most certainy do react to topical exposure - if I get wheat flour on my hands for example, I get insane itching and then the little blisters which take weeks to clear up. I have never actively tested the theory but I would not like to expose myself to inhaling an amount of wheat flour dust (say in a gluten-full bakery) and see what happens!

[zoombie in reply to Lexy]

Hi Lexy, I have CD and DH - I now carry around with me in the car, office, handbag antiseptic wipes and use them frequently! I have been known to wipe the cup in a cafe! I am pretty paranoid but anyone with DH knows the agony of a flare up and it is so easy to accidently ingest the tiniest bit of gluten and not know it!

[pretender in reply to DartmoorGuerrilla]

Dear Dartmoorguerrilla, it is recognised that some coeliac's do react to airbourne wheat, Topical refers to contact with the skin, Oral refers to ingestion and respiratory refers to being inhaled. Flours can be inhaled ending up in the nasal mucus or oral saliva therefore a way of ingestion.

Being 64 years of age twice diagnosed with a further confirmation I do know the difference between CD and an allergy (I have Formaldehyde allergy)

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I react to airborne wheat. I gluttened myself making a gluten cake for my dad so now wear a mask should I ever cook gluten stuff for the gluten eaters in my family (very rare thing) and I also got gluttened when I was walking my pup past the grain dryer when it was drying wheat(I live on a farm) There was a lot of wheat dust flying around. I am fine walking through the wheat fields.