I just wanted to share my story and see if anyone could give a little advice please.
In 2014 I began getting pains in my lower left abdomen sometimes radiating down my left testicle and leg. I went to my GP and asked him if he thought I might have a hernia or something as I’ve always been a keen gym goer and lift weights. He said he couldnt feel one and referred me for an ultrasound. At the ultrasound the radiologist said everything looked fine but my right testicle looked like it had a mass. I was referred to a urologist who told me I had testicular cancer in the right testicle and it needed to be removed asap and that was also the cause of my pain. So I had the testicle removed but 2 weeks later I was informed that they could find no cancer in the testicle. Unfortunately not only did I have to come to terms with losing a testicle unnecessarily but my pain in the left side was increasing.
Over the past 4 years I’ve had every test possible (many paid for privately running into thousands) and 2 exploratory surgeries to see whats causing my pain and stomach cramps and now also horrible constipation with diarrhoea almost every day. In January this year my GP suggested I get tested for coeliac disease as I had a particularly painful day after going for a big Italian meal one night. I had my bloodtest and immediately went gluten free and within days I felt 75% better. The pain was still there but I could finally have a normal bowel movement. The bloodtest came back negative for coeliac which I was disappointed with since I was and still am desperate for a diagnosis! I went to see a nutritionist who recommended the more reliable cyrex array test which also came back negative for coeliac disease but did flag up some other intolerances to wheat and gluten. She told me the test results mean I need to avoid gluten for the rest of my life. So after 3 months of being gluten free I finally feel 95% better! Unfortunately out of nowhere, all my problems returned. I’ve been back to square one again for around a week now and cant remember consuming any gluten other than possibly a sausage at a wedding or maybe some chips? Either way this week has made me question again the possibility that there’s something else going on. Surely consuming such a small amount of gluten wouldn’t give me a whole week of symptoms. Or maybe I ate more of it elsewhere and didn’t realise? I have generally been really disciplined with my diet so I’m not too sure what to do anymore. My left abdomen is cramping up so much that it makes my testicle retract so that it’s extremely tight and painful, but I can tell the pain is coming from my abdomen and not my testicle so it must be intestinal related?? Anyway apologies for the long post, any advice would be really appreciated.