My youngest son became very ill this summer with classic coeliac symptoms, I saw several doctors at my GP surgery who continually told me he had a virus and it was normal for these symptoms to last for up to 6 weeks ( a 20 month old lying down ALL day, vomitting, losing lots of weight etc.). Eventually I realised his symptoms matched with coeliac, when I raised this with my GP they disagreed with me and I only got referred to day clinic at hospital because I refused to leave GPs surgery. That same day hospital realised something was wrong and in less than 2 weeks he was under care of gastro team and gluten free.
After this I got my oldest son tested, even though he has shown no symptoms. His blood test showed elevated ttg levels but GP (not the one I had te row with) said as he was symptom free we shouldn't worry about this. I queried this with him and he agreed to take advice from a paediatric consultant. This resulted in my oldest son being referred to the gastro team.
He has his appt at the end of December, but has been under the weather for a few weeks and has been getting bouts of the runs. I took him to GP today and there advice was to cut out gluten until we see the gastro team. I couldn't believe, I pointed outhe needs to keep having gluten for any testing and GP just shrugged her shoulders.
Are all doctors this ignorant to coeliacs or am I just unlucky?
Any advice on how to manage this greatly appreciated.