Sad upsetting post (new member)

[coowee800]

My 72 year old dad was diagnosed on 17th August with 3 brain tumours. He had a MRI and CAT scan on 17th Aug due to forgetting a few things about a week before and not knowing who the prime minister was or the year. He was then kept in hospital and put on steroids. It was like he had had a stroke slightly. We were told we had to wait to hear what his consultant wanted to do, biopsy or operation or radiotherapy. So we waited a week and dad had awful care with his diabetic insulin jabs, he was still able to walk with help and could eat solid food. We were then told by a doctor that they do not think his 3 brain tumours are the primary source as it was so rare to have 3 so he was tested but nothing more found. We were then told he could go home whilst we await news from his consultant. So dad is sent home as he could walk up stairs. Mum and dad d not have a downstairs loo so I met them to bring a commode home. We waited another week as that was when the consultant had her meeting about dad. By this time he had deteriorated and was bed bound. The consutant did a zoom call and informed us it was the primary tumour with 2 smaller ones shooting out of it. She said it was a grade 4 glioblastoma and there will be no treatment and his prognosis is weeks. To say we were shocked is an understement! Dad passed away a week ago. We are all so shocked. We begged the doctors for private treatment we had the money but we were just told to wait. Just so utterly shocked.

[DD36]

Hello, I am so sorry to read about your dad. My dad was diagnosed at the end of July when I took him to a and e thinking he had had a mini stroke. He had 5 or 6 weeks being fairly okay just struggling to find the right words sometimes but deteriorated rapidly after that, is now bed bound and refusing food. It is so sad to see him in this state when despite being nearly eighty he was so fit and full of life until so recently. Thanks for sharing your story, it helps to know we are not alone in our shock.

[ShannonOxf]

I'm so sorry to read this. Far more research needs to be done for GBM and we need better treatment options

[Shannon_TBTC Partner]

We are so sorry to hear about your dad coowee800 and imagine this is an extremely difficult and emotional time for you and your family. We are here should you ever want to talk.

[Soul1117]

I am so very sorry for your loss. My dad was diagnosed with a GB Grade 4 in late March. He passed away 8 weeks later. He went in for a biopsy and never left the hospital until we put him in hospice. He lost all ability to walk or stand (the day before his biopsy this happened, it had nothing to do with his surgery) We did try some radiation for a couple of weeks. No result. They wanted to do chemo, but didn’t think he could manage the side effects (and I agreed with that). Glios are monsters. They take over everything very quickly. And there aren’t solid treatments out there right now. It’s a terrible thing to have to witness someone you love going through. I feel your pain. I hope you can find peace.

[RescueLabMom]

So sorry to read your story as mine is similar. My mom was hospitalized in early August for dehydration and weight loss when they scheduled MRI, CT scans and found her glio. Had craniotomy in September but she continued to worsen and started falling and went back into hospital on Oct 4 and passed away in hospice on Oct 20. It was awful to watch her deteriorate and I’m just sad and angry. Sorry for your loss.