Hypermobility sucks!

[Archerchick]

i suffer from Joint hypermobility syndrome where all of my joints constantly click and give way. At the moment i am struggling withthe pain and i really need some help. I cant keep taking tablets because I'mbecoming immune to them. Someone help

[pikamonster]

Hey there - I know that pain! And I'm in a similar position where I can't take many things because I also have non-alcoholic liver disease. Have you seen a pain specialist? They can tweak what medication you're on and offer other solutions like a tens machine, or impatient courses in pain management. I think you might be a really good candidate for one of those.

I personally rely on getting massages and seeing an osteopath fairly regularly to make me feel better generally. They don't necessarily help the actual joint problems but can be good for muscle spasming pain and just make me feel looked after really - but do be sure to check with your GP and to be upfront about your condition when you see anybody like that. My massages need to be very gentle so as not to pop anything back out.

Also Google to see if there's a hydropool near you. These pools are very heated and designed for the therapeutic use of people with conditions like ours amongst others. The warmth and weightlessness of the water can be really soothing.

Also, I don't know your specific situation - are you bracing, using sticks or crutches or using a wheelchair at all? Some of these things feel like giving in to some people but I have all of them and use them when I want to achieve something I otherwise couldn't and it is really empowering, not sad. I know if I don't use my walking stick or crutches and go out all day I will really pay for it, so now I use them and pay for it a lot less.

Don't be too disheartened by it all, I know it can be scary. Once you get into the swing of what works for you it does get a lot easier.

[Mialenari]

My physiotherapist recently told me I have hypermobility and told me that because I also have Fibro and m.e and can't exercise much I don't have the muscle strength to hold the joints in place. He gave me a routine to gently work my core muscles to help lock the joints in place( my back is the worst for pain/giving out at the moment). He said stretches are the worst thing I could do and to avoid them.

Not really sure it'll be any help and you've probably tried that avenue but thought i'd throw my two cents worth in.

Wishing you the best of luck.