Hypermobility syndrome

[rowantree]

Anyone have hypermobility syndrome? There isn't a particular site for it, so are you all on this one? And/ or pain concern?

Thanks

[Tearsofaclown]

Hi, Before I was given the diagnosis of fibromyalgia and chronic fatigue syndrome, the consultant i saw did suggest that with a previous childhood condition of hypermobility syndrome, i would be more likely to get fibro and cfs, than other groups in the population. As i have no family to ask, and it was a long time ago, i cannot recall whether i had hypermobility or not! I do remember being able to do things with my joints that my peers couldn't do, and could easily wrap my legs around the back of my head. even now, some of my joints can do peculiar things, but i don't tend to use it as my party-trick!! the consultant said this sounded exactly what he thought about fibro & cfs. But, i didn't ask any questions on the condition, so cannot be sure of all the facts. I would think you're on the right site, and will find the information on here, very helpful to you. Best Wishes,

Tearsofaclown.

[Hidden]

Hi

I had hypermobility syndrome as a child (undiagnosed) as did my mother and my daughter is double jointed and has been diagnosed as having hypermobility syndrome in Mexico! My mother has no real joint problems, I have fibromyalgia and osteoarthritis as well as getting intermittent bursitis and tendonitis.

I tend not to use any website for fibromyalgia on a regular basis although this one is great for info and support, I don't know of any website for hypermobility syndrome.

I did read research papers some time ago that linked hypermobility syndrome, fibromyalgia, IBS and depression, also the specialist I saw said that spectrum is fairly typical for people who have had traumatic or and/abusive early life experiences which I have, although not everyone who has any of the disorders has had the early difficulties.

Suexx

[Rudolph]

I may be able to help. Do you live in the south west of England?

[rowantree]

I'm in the southeast. Kent.

[Rudolph]

If you Google hyper mobility syndrome for south east Kent you will get a lot of information together with Ehlers-Danlos syndrome to which hyper mobility is often linked.

[rowantree]

Thanks I will. I'm waiting for diagnosis still, as my symptoms fit quite a few different diagnoses.

[CalmTum]

My son has been described as having HM. He fell at school 2 yrs ago and has been in chronic pain of the knees and hips since. He is age 15 and has not attended school since the fall. Doctors to our confusion have tried to associate it with childhood trauma. It's seems like such a terrible waste of a life. He wont participate in any movement except his daily shower, the toilet and the immediate need to eat. Is in too much pain to concentrate on. Can you relate to any of this?

[rowantree]

Oh that's so awful for him and for you. No my pain has never been that bad. I was diagnosed with rheumatism at 14 but it was mostly achy joints, not pain. Then 15 years ago I developed bad pain in knees. It was thought it was crps and went by itself after a year or so. But I was on strong painkillers for a long time, and wrecked my stomach from it. Now have Ibs.

Now I have the pain in toes, heels, wrists, knuckles, thumbs. And achy knees, elbows.