I'm new to this site, but here is my story . . .
I had been on the drug Zyprexa for three years due to a misdiagnosis and was weaning off of it when my middle toes in both feet sorta felt numb. Actually its more at the metatarsal head where the numbness was felt. A few days later I had numbness in my fingers, but that came and went for a few weeks and disappeared. The toe thing stayed around. I had just started cycling for the season, so I thought it may be that. Went to the doctor, feeling and reflex were fine, so no further testing. It waxed and waned all summer. I thought it might be some sort of diabetes brought on by the zyprexa, checked my blood sugar and it was fine. Moved south for a new job and started cycling to work everyday, 5 miles each way with a 30 lb pack. Had weird sensations in left leg that would come and go. I didn't really have pain, my toes just felt like a block of wood if I was standing or walking for long. When I laid down, I couldn't even tell if I had numbness. If I work my Dr. Scholls gel sandals, I didn't notice the numbness. In the fall I began to feel tightness and weakness in the legs. I started having small fascinations. Then, my hamstrings started to ache. I kept biking through the year and the numbness and weakness got better, but my hamstrings just ached. My biking times never really changed. It took my 20-22 minutes to go 5 miles. The following year, I got off zyprexa totally and began to feel pronounced weakness in my legs and thighs. That continues to today and and I have pain in my hands and forearms. On rainy days it really flares. Last August, I injured the sciatic nerve on my right side and my right foot went really numb on the outside and my leg got really weak. It seems to be getting worse everyday in a sort of up and down fashion. I have gained 40 lbs in a year and my morning fasting numbers are often pre-diabetic 100-125. Doctors ran the usual tests for infection, diabetes, B deficiency, etc. Nothing comes back as a cause. I have herniations in my L5-s1 area and c5 area, but the surgeon doesn't think these have anything to do with it. Thy have done nerve studies on my legs and arms and concluded that I have mild neuropathy in hands and feet. It sure doesn't feel that way to me with the encroaching weakness. They won't do any more tests and pronounce me to be not medically treatable.
What can I do? I take R alpha lipoic acid, b complex and magnesium.