Hi All, I thought I was having a really bad migraine last weekend. I was taken to hospital and they initial thought I may have had a stroke. I had a CT Scan and an MRI, these both came back ok. I had sensory overload and normally my face drops on the left either my FND. This time it was the right side. I stayed in a few days then they wanted me to go to the stroke ward but I said if nothing is showing let me home. The hospital said I could go home as they would put in a request for me to go TIA clinic within 7 days. Well when I came home I fell twice, pins and needles in my right foot. Feeling rather angry and agitated. Today is the first day I feel a bout better. However no call from TIA but doctor did mention about my FND. I know the difference this was not my FND. The pain in my head lasted over 10 hours?! Anyway my point is FND is a viscous label and I’m fed up with it. I was diagnosed originally in 2018 with white matter. He actually listened to me and all the others since have fobbed me off. Sorry everyone you don’t need to hear my stuff when you’ve all got enough going on yourselves. But any advice I would be grateful.
Spent a few days in hospital - Functional Neurol...
Spent a few days in hospital
Hi I had the same but lost my sight in my left eye for a short time.the headaches were really bad afterwards Nothing showed up on mri they said it was a tia sent me to a the stroke clinic and put me on clopidogrel to be safe I think.
Usually most my symptoms are on the left side but sometimes they are on my right side to. I would chase your appointment for the clinic
Hope you start to feel better soon
Take care
Hi Alwayspink60 I am going to see them today . Although the doctors said it was a hemiplegic migraine. I have just had the usual from the nurse. You’ve got FND😢 .. Hopefully a doctor may listen. I’m glad you did not lose your eyesight permanently. And you are feeling well yourself now ? Take care and thank you for replying.
My symptoms are on the left also and they tested me for MS and a stroke after memory loss and going unconsious/collapsing. Outcome several months later - FND. It has impacted greatly on me.
yes . As if I’m at it. Oh well. You enjoy Christmas. Thanks for the reply
I hope you have a good Christmas take care
Stick to your guns, your know its not related, so fight for the medical help you deserve.
Thank you Lady4. I have not yet been able to go back to work. They increased my Candersatan and said that they don’t need to see me again. But if I have a bad bout again to come back?! I even asked for a letter of support to give to work so I could be moved from directly under the lights and I was told I’m on the list to see an ophthalmologist that’s it? I told them I have thyrotoxicosis in case related. Never batted an eyelid. I’m totally drained and not sleeping very well. I’m so tired of it all X I also found out this week my nan was paralysed from a stroke but I was only young at the time dads side. One of my cousins also had a stroke about 4 years back but I didn’t mention that as I thought they meant direct family… again dad’s side. So when they asked me has anyone in the family had a stroke I said no. Only my husband but I didn’t tell them that as obviously we are not related. I honestly just want to be healthy. I’m fed up not being taken seriously it truly is taking its toll X
Whats Candersatan for?
I know it can be draining, just make sure you relax and have some "me time". Try not not worry.
I was given them along with amitriptyline to help with my migraines initially from when I was under neurology at The Walton Centre in 2019. But they also discharged me after sending my for CBT I am now again waiting to see a psychologist as the CBT didn’t work for me. I’m trying so hard to have me time but I also have to look after my husband but thank you Lady4. I appreciate you trying to help me you are an angel especially with looking after your son too X
We are all here to help and share our knowledge/experience in the hope it will help others manage their symptoms.
Fnd flare ups
FND or ME?
Stay Positive, Keep moving, and don't give up, there is life in being diagnosed with FND.
Cruel cruel diagnosis / NHS money saver.
Were can I find a doctor that does not think fnd is a mental health crisis
