No more work for me 😞: It's been... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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No more work for me 😞

Littlecook profile image
Littlecook
•15 Replies

It's been confirmed today that my work days are now over ,my company requested a medical report from my doctor, I received a copy today saying with my condition I will never be able to work again for the rest of my life, I have spoken to my company today who needs to discuss things with my head office and I should know the out come in a day or two ,I know longer know what to say or do 😞.

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Littlecook profile image
Littlecook
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15 Replies
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MONIREN profile image
MONIREN

It must be difficult to face. My husband had to stop work as a builder at 46 because of a work injury. Caused him depression. He still has times where his injury causes septicemia, each time, his body is getting tired of fighting it. You face one day at a time. We deal with each challenge with humour. It's difficult when your body won't let you do what your mind wants to. Take care. Moni

Littlecook profile image
Littlecook• in reply toMONIREN

Thank you for your kind words, it's something that I didn't really think would happen, my heart goes out to you and your husband. Look after your self's Kevin

MONIREN profile image
MONIREN• in reply toLittlecook

From a wife's perspective, it's difficult for us to understand what you must be feeling. It takes time for all the family. Make the most of every day. Find something that the family can enjoy together. Thinking of you all. Take care. Moni

Lady4 profile image
Lady4

They should be making adaptions.

Westie_1 profile image
Westie_1

Hi Littlecook, my heart goes out to you as I know what it feels like when work start watching everything you do. I have adaptions in work but they measured me up wrong and to be honest I don’t think I will be far behind you. But please take care of yourself as best as possible. I know easier said than done. I’m waiting for counselling to help with my situation. Maybe that may help you too? I would imagine there would also be help out there for you as you have had to give up on medical grounds? Anyway I believe everything happens for a reason even if it is crap. Please know that you are not alone. Try and stay in the best mindset possible. I’m so sorry for your situation and hope you have a good network of family and friends x

RV30 profile image
RV30

I’m sorry to read this but as 1 door closes another opens. Work is a bit part of our life but it doesn’t define us. You will more energy to enjoy other things.

I have cut my hours massively and it has been a big adjustment but I have found I have energy to enjoy spending time with friends and reading. I was worried about money but you find ways to wiggle the money and inviting your mates for a cuppa at yours saves coffee costs. My friendships have massively improved as I have energy.

Just make sure you keep talking as it’s a big adjustment and find something you like to do. The library’s rent out audible books if reading is hard on bad days.

Lady4 profile image
Lady4

Hi, interested to know (if you can share what your Doctor said to your workplace).

Cockerpoos73 profile image
Cockerpoos73

Hi Littlecook. My last day was the 14th December. I know exactly how you feel. Only just got diagnosed with FND 4 months ago. It is very draining living with symptoms on a daily basis. You never know what sort of day you are going to have. Have to take each day as it comes. Came across this website. Hoping it helps me to understand and chat with people who have it. You take care. Stay strong.

Lady4 profile image
Lady4• in reply toCockerpoos73

It affects people different ways because we are all individuals and so our nervous system responds differently to others.

I think number one advise is to be kind to yourself, try not to get too overwhelmed with the symptoms and too anxious (easy said the done).

Plus try not to pay too much focus to your symptoms.

Maybe, when you feel ready, tell us a little bit of your journey and maybe collectively we can help.

Cockerpoos73 profile image
Cockerpoos73• in reply toLady4

Thank you very much for that. I do have high anxiety. I suffer with complex PTSD too. I enjoy been in the pool. Do a little bit of swimming and aquafit.. I use to swim 80 lengths. Can't do that any more. Also going through the menopause which I have been for 11 years now. I wear a hrt patch. I have heard that menopause can aggravate FND. I am going to get a review from the doctors in the New Year. Hope you have a nice Christmas.

Littlecook profile image
Littlecook• in reply toCockerpoos73

HelloSorry you are going though the menopause for so long it's must be hard for you , but you must try and enjoy christmas the best you can do you have family husband what ever just relax, I hope you are feeling better than you did ,take care sending best wishes your way .

Cockerpoos73 profile image
Cockerpoos73• in reply toLittlecook

Yes I have a partner who is coming to stay over Christmas and 4 grown up girls. They are all so supportive with me. Thank you so much for your messages. Means a lot to me.

Littlecook profile image
Littlecook• in reply toCockerpoos73

That's what friends are for ,hope you don't mind me calling you a friend.

Hello Littlecook.

This must be very upsetting news. Having a condition that forces one to step down from a major part of their life is devastating. It is a loss. A loss of income, purpose, income, identity; so many areas.

I too, have faced this. Nearly four years ago, I was slammed with forced medical retirement. No sugarcoating—I was a mess. This major change was not in my plan. It was nearly traumatic.

Fast forward to today, I have adjusted. Granted, my life is different from before. I focus on the current me.

I pray that you will find a path that works for you. Reach out to find resources that can help you. Be proactive and your own advocate. That in itself is a job. Please know you are worth it! I wish you the best, Littlecook.

HenriettaPoultryfoot

Lady4 profile image
Lady4• in reply toHenriettaPoultryfoot

And maybe don't concentrate on what you have lost, a job doesn't define us and neither does FND.

Do what makes you happy and live your best life. Sometimes in life things happen, forcing us to slow down and thats not always a bad thing.

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