I was wondering how everyone feels when walking out and about , does your head feel empty do you know what you should be doing and do you feel safe ? .Luckily I'm normally with my wife when we are out ,but I still don't feel safe my head feels empty or missing off my shoulders, but I've not spoken about this to anyone specially my wife I don’t like to worry her she worries too much about me , I know I couldn't go far by my self I just don't know where I would end up , when I get my hospital appointment or when I see my doctor I will have to mention this as a concern.
Do you think I'm losing the plot?
Written by
Littlecook
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I don't think you've lost the plot.I do however think it would be helpful to mention it to a medical care provider that you trust.
I just had to go do an errand out of the house which I very rarely do and it was a major ordeal.
Mostly physical pain and weakness.
I used to feel like you described a lot of the time with my head being empty or not existing on my shoulders but now that I need a rollator (a frame with four wheels and a seat in the middle of the handles) and walking and not falling are so difficult I'm concentrating so hard on things that I'm more aware of reality.
Not really to be perfectly honest but I appreciate your message.I'm actually going to talk about it in the anxiety and depression forum because that's what it is
I think you have just become overwhelmed with everything. If you begin to feel like that whilst out walking in silence, practise the 5,4,3,2,1 grounding technique.
At a Glance
Feeling anxious or overwhelmed? This technique can help. All you have to do is identify:
5 things you can see
4 things you can feel - you could put a couple of sensory items in your pocket*
3 things you can hear
2 things you can smell - if your struggling have a little bottle of essential oil in your pocket too*
1 thing you can taste - maybe a mint at hand too, or a tangy sweet*
This simple yet powerful exercise uses your senses to anchor you in the present moment, helping you find some calm amidst the chaos.
I have a similar sort of thing, but it's more like my brain just gets completely overwhelmed by too much input. It helps if I use a cane or walker, just to feel grounded, and I also wear a leg brace on my affected side, which makes me feel less spacy too. I had to go out really early the other day - it was still dark and there was no one around and I felt so much better. I also play music in my head and that helps with coordination. I think it's just that my brain has lost its sense of automatic rhythm. This appears to be "normal" for FND so I don't think you've lost the plot - unless we all have, lol.
I struggle when out and about. I prefer to be with someone. I have a lot of seizures especially triggered by lights in shops so I wear shades on top of my glasses. I also don't feel safe. I know where you are coming from with that. Only got diagnosed 4 months ago. Still trying to adapt to the change. Just new to this. Nice to chat to people who understand.
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