T 0 ALL ON FND SITE: Happy New year to... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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T 0 ALL ON FND SITE

GrEeNbEeNs profile image
12 Replies

Happy New year to everyone on the FND site I wish yous all the best with your health and hope yous can manage to find as much happiness a possible I know myself that it's a hard because we suffer so much it's a constant battle everyday,hopefully more research will be done for FND we can only hope and pray.HAVE THE BEST 2024 AS POSSIBLE.😀KEEP SMILING.

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GrEeNbEeNs profile image
GrEeNbEeNs
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12 Replies
ZoeGlastonbury profile image
ZoeGlastonbury

Happy new year to you too xxx

GrEeNbEeNs profile image
GrEeNbEeNs in reply toZoeGlastonbury

THANKS, I HOPE YOUR WELL AND NOT STUGGLING TO MUCH WITH TRYING TO LIVE WITH FND TAKE CARE X

Lady4 profile image
Lady4

Hi, Happy New Year to you too, try and find joy in the little things and remain positive. Hugs xx

GrEeNbEeNs profile image
GrEeNbEeNs in reply toLady4

Hi lady4, first of all I would like to say thanks for your reply,if I'm not being to cheeky could you tell me what FND symptoms you have.I find your post interesting especially when you post about other conditions that can cause similar symptoms as FND.Since being on this website and reading other posts I don't believe that there is such a thing as FND and it's all to do with your subconscious mind., what's your thoughts on that please?🤔

Lady4 profile image
Lady4 in reply toGrEeNbEeNs

Hi, if you have read all my posts you will see that I don't have FND or CRPS, my teenage son was diagnosed with it June 21/Nov 21. I will list the symptoms below from recollection (although may have missed a few, will need to check back at my diary notes and spreadsheet for Neurologist):Numb Legs

Thigh Spasms

Drop Attacks

Heightened Sensitivity to Light (esp first thing in the morning, daren't open curtains at times)

Heightened Sensitivity to Smells

Mentioned once about feeling air (can't recall exactly on that occasion)

Headaches / Migrane / Tension (feeling if his brain bouncing about from side to side)

After cold and after too flights (feeling of falling suddenly (like in an elevator), going down and screamed initially). Think experienced due to heightened senses and blocked sinuses).

As for do I believe its subconscious and he has little or no control, yes. I tried the distraction technique when legs in spasm and that worked.

Also, on one occasion I managed to assert my Authority and even though his legs started playing up, I said we were expected somewhere (when he wanted to stay home) and stood my ground in a battle of the wills.

GrEeNbEeNs profile image
GrEeNbEeNs in reply toLady4

Thanks for your reply sorry I remember now that it's your son that's got FND my memory a d concentration is very bad.My brain has been telling me that it's you that's got it because your answer g the posts.I sometimes struggle to take in the simplest of things and feel silly when people have to explain things to me again and again.Thanks for telling me your son's symptoms it must be very depressing for a young person to have FND it sounds as if you do as much as you can to support him.

Lady4 profile image
Lady4 in reply toGrEeNbEeNs

Thats okay, understandable.When he is fine, he is fine but then not so, a bit of a rollercoaster as you can imagine but symptoms are intermittent and school holidays better.

I reply or post to help others.

Birdr profile image
Birdr

Thanks and to you too! 😀💐✨️

GrEeNbEeNs profile image
GrEeNbEeNs in reply toBirdr

Thanks for your reply loved the emojies.

Misstea profile image
Misstea

Happy New Year.

GrEeNbEeNs profile image
GrEeNbEeNs in reply toMisstea

Thanks for your reply hope your well.X

Misstea profile image
Misstea in reply toGrEeNbEeNs

Same to you. ☺️

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