Fnd and what they think: Hi iam shanlie... - Functional Neurol...

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Fnd and what they think

7 Replies

Hi iam shanlie I have fnd other day over course of mouths I been told iam deaf then tinus then hyposentive hearing not sure of out come or get to see consultant but the lady who done tests said as all tests normal they will probably say your fnd I have fibromyalgia plus other things spine etc thease testes were for long tearm dizziness I have had all thease since a very young age a girl so another palm off I have never has follow ups etc since been diagnosed with eay think gp thinks it's mereise decease they said oh no 🤦🏻‍♀️ not that has to be fnd it's so frustrating once they can't find nothing else goes down as fnd that's why they said had it because nothing else showed just feel like it's ok well we say you got this I cried for mouths years ago when got diagnosed I have been this way since a very young age then diagnosed years ago with both then other stuff along the way horrible I feel there is know care as well I know Ms thay have regular checks and a nurse they can ring etc in between but fnd fibro other complex illness nothing nothing never had checks since day was diagnosed since young age from what should be call specialist thanks shanlie

7 Replies
Lady4 profile image
Lady4

Hi Shanlie. FND is a "rule in" diagnosis, not because they can't find/match with something else.

Are you deaf or do you have sensitivity to sound? Did you have a positive Tinnitus diagnosis and Fibro diagnosis? or was this also guesses of the medical practitioners?

in reply toLady4

I have a full diagnose on both counts and alot of other stuff going on since a young girl full on both counts consultants in the fields and iam saying just lefted no care there or follow up have nice day

Lady4 profile image
Lady4 in reply to

Thanks. So, how did they diagnosis FND?

in reply toLady4

Excuse me?

Don't have to answer your questions just know took years and years of fighting to find out what was wrong amongst other things that's all going to say

210272 profile image
210272 in reply to

I'd ask for a second opinion since the dx of FND must not be made on the basis of normal test results alone, as all neurologists know. I hear you re having to fight for answers and not getting the care and support you need and I think your human rights with regards to your health have been seriously neglected.

Lady4 profile image
Lady4

You said "tests normal they will probably say your fnd". Didn't mention positive "rule in" diagnosis. It read as all tests normal thats what they think you have too.

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