Follow up anestistic flare up.

[dawson63]

Hi everyone. I live in Sydney Australia. It's too bad when things are so behind That you have to Reach out to the other side of the world to get support. In saying that my GP has rung me everyday since I went to see him. He hadn't seen me have such a severe FND turn.So in some ways, I"m not surprised he was checking me. Also my Psychiatrist message me At ten o'clock at night To check on me and Offer to write a script if I need additional diazapram. I do have a great support network A neurologist. I Also over the last 3 months. Ive been involved in a research Project run Prince of Wales hospital at randwick in sydney which is headed by a Neuropsychiatrist. At this stage the funding for the project runs out is

September this year. It's great, its happened.

But considering how far we are behind the project needs to be running for years not months. When are we going to Take on board. FND Is real and not rare. Just underdiagnose If the stats i'm reading are even close to the reality FND is the most seen condition seen by Neurologists only topped by those seeing a neurologist for migrain Headaches. After 44 years without a diagnosis Surely it's not too much to ask to continue the research (Of course, that means money) into this very complex condition and make sure the word get out to not only the medical profession and to the public at large that is not just all in our heads. Maybe if the doctors and medical staff who were involved in my recent surgeries saw the remifications of their shortfalls In not attending to the 2 hour-long. seizures I had while I was under the care or even take the time to write them up in the discharge summary. Things would be a whole lot better for all of us.