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Functional Neurological Disorder - FND Hope

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Has anyone struggling with FND who lives in Australia applied for NDIS and were successful? Or unsuccessful?

bookworm_14 profile image
4 Replies

Hi there,

I am curious and wanted to reach out to ask if anyone here with FND who lives in Australia, have successfully qualified for NDIS with this condition? Or even tried to apply but were unsuccessful? And if so, what was the process like? I have heard mixed opinions from both medical practitioners and family members on whether people affected by FND and who experience a range of disabling symptoms because of this condition, can get NDIS and if our condition even falls under the category of NDIS approved conditions that meet the eligibility requirement that you must have a disability caused by a permanent impairment (as stated on their website).

Thank you for taking the time to read my post any insight on this topic would be appreciated. And for anyone reading this who may be having a tough day, tough week, tough several months, or tough year- wherever you’re at in your FND journey please know you’re not alone, I’m proud of you. You got this.

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bookworm_14 profile image
bookworm_14
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4 Replies
maeveblue profile image
maeveblue

I was encouraged to consider it. I am involved with NDIS for my son and the process is lengthy and the reports required can be costly. I guess it depends the degree of impairment your FND causes against the stress of the NDIS process. I think funding would most likely be obtained under list B medical conditions. Below is the description from the NDIS website.

People diagnosed with List B medical conditions are considered to have a permanent impairment.

However, as the severity of the impairment is variable, they will need to demonstrate that as a result of their impairment:

they have substantially reduced functional capacity or psychosocial functioning;

their capacity for social or economic participation is affected; and

they are likely to require support under the NDIS for the duration of their lifetime

bookworm_14 profile image
bookworm_14

Hi, thank you for your response and the information. I also was recently encouraged to consider it. But since I don’t know much about how NDIS works, or know anyone personally with FND who has gone through this big process, the idea of it is all a bit scary/overwhelming. I will have more of a read through of their website. Take care.

Mattie21 profile image
Mattie21 in reply to bookworm_14

Hiya, I recently went through this process. It costs around 2k to have a functional assessment done and report write up. I could do over telehealth over two sessions which were about 90mins each or just over. The staff were really great and flagged when then noticed I was getting fatigued. With this report combined with a copy of my neurologist report from a few years ago which listed I had a non organic disorder my fnd was approved as primary disability so that way I could have both fnd and autism supports.

I was really worried through process but now I just feel a lot at peace. It was a lot of money to pay up front but it's set up now and I can use my plan to get the help I'm seeking without thinking ohh is this problem an autism problem or an fnd problem and so I can't use my plan etc

Mattie21 profile image
Mattie21 in reply to Mattie21

I went through fnd org with blessing and kate

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