I am a 20 year old University student and I'm struggling dealing with this diagnosis.
I've suffered from chronic middle ear infections for 6 years now, except last year I ended up with an inner ear infection which took 9 months to clear up. During this time I ended up having to move home and temporarily drop out of university. I didn't have any FND symptoms until after an operation in January 2014 where I had a simple t-tube insertion into my ears. I had what seems to be a reaction to the anaesthetic as I woke up 2 hours later than I should have with an anaesthetist next to me telling me I had to stay in over night, still with an oxygen mask on and in a lot of pain. I know it wasn't the norm as I had the same operation in April 2013 and I didn't wake up like this. I recovered and was sent home but I was left feeling completely exhausted.
Shortly after this I got tingles down the left side of my body and my mum noticed I couldn't move my toes or my fingers all the time. This gradually worsened into my hand and foot getting frozen and swelling and turning purple with an intense burny pain. My neurologist ran tests for MS and thankfully things came back clear. He also diagnosed me with a vestibular migraine and I take amitriptyline for it and the nerve pain.
As the vertigo began to ease I could read again and walk again and things were going great; I'm even back at university. However now I have bladder problems, difficulty swallowing, I limp when I walk and my arm and foot continue to swell and get painful. I went back to neurology and I don't feel like I was listened to properly; he started going on about an emotional trauma. 1) where do they get off saying this? He spent a grand total of 20 minutes with me, he doesn't know my life. I'm 20 I had a wonderful childhood and haven't suffered any trauma. After going through the vertigo experience I'm so happy I can live alone and continue with my studies and 2) how can an emotional trauma be connected to such symptoms? and if emotions can cause symptoms like this then why is it "impossible" to not end up with an "overloaded CNS" due to chronic sickness for 6 years mingled with 2 operations in less than a year, not being able to move for 9 months whilst growing up and having doctors call me an attention seeker? I find it all rather vexing.
He didn't even give my issue a name though he did admit there was a definite weakness in my left side and that my reflexes don't work either. I didn't have FND as a name until he sent a letter about it. He also wants to send me to a neuropsychologist but until someone tells me what these people actually do then I won't go; I don't want neuropsychology on my GP notes in case I end up in another round of "you're stressed and attention seeking" when there is actually something medically wrong with me.
Finally I was wondering if people get fatigue and struggle sometimes with daily life? I know I'm probably tired since I was only able to start moving properly in June and now with the demands of university I'm super tired and every now and then I need time off just to not move. I still do my work but from my flat instead. I take a vitamin B supplement and it has made a difference with the fatigue but sometimes resting is all which helps.
Sorry for the long message! I'm just frustrated and annoyed about it all especially as a young person I've missed out on nearly a year of my life and its frustrating having a diagnosis of something doctors don't understand properly and where they offer you zero help!