I've not been diagnosed with FND or anything yet, but my conditions are definitely something neurological by what we can tell, which I've had for about 2 years straight now.
Paraesthesia being the main one, numbness, shooting pain, electrical feeling, pins and needles, icey/burning pain etc all the fun stuff, including spasms, and rarely partial paralysis (usually limbs).
It's all over my body, including face and sometimes tongue; after GPs suggested it could be prolonged anemia (10 yr history) some deficiencies, or possibly an autoimmune disorder like MS, we got me sent to a specialist who put it all down to anxiety without taking a proper history.
I finally saw a good specialist and she did some blood tests on a bunch of disorders, Rhumatoid factor, diabetes, coeliac, inflammation, creatinine,thyroid function.
Also in early Dec I'll have a Nerve Conduction Study.
I'm nervous that as it's been 2 years, any damage is permanent and they won't be able to help it. I want my body back, I want to be able to feel my hair, and touch my face without feeling like I'm touching electric, I want to have the heating on and not feel like Im wrapped in ice while still getting hot flushes...
I'm hoping the results will show something or at least point us in a direction. but mostly I want them to be able to just reverse it, even if it's reversing half the damage, I just can't imagine feeling like this the rest of my life...
In the mean time, I'm trying to learn ways to deal with this just in case. I'm learning what textures to avoid, and it's helping me form theories on how tactile sensory processing works, which is kind of cool.
If anyone here gets paraesthesia, do you know of any material for gloves that would be the least painful.
Silky materials feel icey and complex ones like wool feel stabby and scratchy. Not sure what my options are.
If anyone's had the NCS or EMGs it'd be great to hear your experiences too. I hope they can do follow up ones in other areas like the face if these don't account for such places, but I suppose that's only necessary if we don't have a full clinical picture.
Really, just talking to anyone would be great right now. I want to talk to my friends about it, but I think all of this scares them and they don't know what to say. So they usually say nothing and it's horrible.