fnd?: I don't know where to begin, but... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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fnd?

YESNOMAYBE profile image
4 Replies

I don't know where to begin, but for two years I've had about terrible joint pain at about 3-7 range, chest pain occasion pain level (5 ), and for about six year horrible stomach pain after eating . All my blood test came back normal for rheumatologist Issues like RA and lupus. The only thing that showed was a potassium deficiency.

So because my joint pain at the time was one sided at the time and I experienced slurred speech, I went to a neurologist. The neurologist did tests which made me get an MRI, but nothing came up. I did have a vitiam D shortage. At the end I was given a sheet of paper directing me to the nerosymptoms site and a horrible antidepressant that I stopped (Which gave me the awareness drinking gives). The site has everything on it, it's so vague it could be applicable to a lot of illnesses. So vagueI raise my eyebrows at the 5% misdiagnosis rate.

I went to a physical therapist and was than refereed to a pain clinic. I went, but wondered why I'm not being tested for illness like gastrointestinal illnesses like chrons or how they don't know I'm not one of the 30% of people with RA that don't test positive.

At the pain clinic I'm treated like someone who can't accept their illness. I don't think there isn't enough concrete proof (In my mind) whatever this is possesses a neurological nature. I feel like I'm being shut out of the conversation for any other cause. I'm wondering what to do.

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YESNOMAYBE
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giltnane profile image
giltnane

HI I STARTED WITH FALLS AND THEN GROIN PAIN WAS GIVEN MEDS FOR PAIN WHICH GAVE TERRIBLE PAIN IN STOMACH PROBLEM WITH BOWEL COUDN'T EAT LOSSING WAIT RAPIDLY AFTER SEVERAL INVESTIGATIONS AND ALL LIKE YOU BLOOD TESTS AND CT MRI SCAN CAME CLEAR I WAS PUT ON NG FEEDING. WAS SENT TO A DR GLYNN IN LONDON WHITE CHAPEL HOSPITAL WHERE I WAS TESTED AND FOUND TO HAVE PAN GI DISMOTILITY WHICH AFFECTES THE DIGESTIVE SYSTEAM SOME SIMES IT CAN BE DELT WITH ANTIBIOTICS AS IT CAN BE CAUSED BY BAD BACTERIA. YOU NEED TO ASK FOR TEST TO CHECK SIMPLE TEST I KNOW THAT DO IT A QUEENS HOSPITAL ROMFORD YOU ARE ACCESSED OVER FOUR HOURD I WAS FOUND TO BE INTOLRANT OF LACTOES, BUT HAVE INTOLARANCE TO WHEAT GLUTON, AND MANY OTHERS. I HAVE NOW BEEN NG FED SINCE 2012 AND MY WEIGHT IS LOW BUT STABLE NOT THE BEST SOLUTION BUT ARE OTHER OPTION SUCH AS A PEG. IF YOU GO BACK TO YOUR GP TO BE TESTED IT MAY HELP. GOOD LUCK

cgarff profile image
cgarff

I completely agree with you. I don't think that enough is done to figure this out. They just don't know what to do because the tests come out fine, but obviously there is something wrong, they just give up cause they can't find anything. With all the studies going on around it, you would think they would find something better to say than I don't know or fnd umbrella. . I am so sorry you have to go through this as well. Keep up the fight, don't give up trying to find answers.

Pain in the chest can be from costochondroitin or from your stomach. Has your doctor asked to you to take Gaviscon? It really settled down my gastritis. He also put me onto PPIs for stomach acid.

orfcbeas profile image
orfcbeas

FND/Conversion Disorder, whatever they want to call it, to me, is nothing more than a cop out. Doctors are too proud to admit they don't know, so they give you a B.S. diagnosis, which makes it nearly impossible to get the help you need. People used to become doctor's because they were compassionate and wanted to help; today, it's all about the money.

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