My FND

[Dogfreedom]

Hi all, well after going to the doctors for nearly 5yrs, sat there struggling to walk or speak having a seizures once a week, nothing wrong with you never seen any like it we don't understand it. 2yrs in MRI scan clear, phone appointment with neurologist Warrington department nothing wrong with you it's just stress and not seizures as you're aware of it happening so no help no diagnosis.. year's on still same got new appointment at Royal Stoke hospital face to face appointment after full check and videos of seizures and how I walk was diagnosed wit Fnd. Believed at last and referred to mental health team also bran wave scan... This illness is destroying me so embarrassing and mentally debilitating.

[ginganinja]

Have a look into a medical cannabis prescription Dogfreedom.

I have been successfully treating my ABI and FND with medical cannabis oil and flower and I am now over a year seizure free.

A combination of THC and CBD works best.

[Dogfreedom in reply to ginganinja]

Aw thanks for the advice.

[Louiselovesyellow]

Bless you! What an awful experience! Those neurologists should be reported for what they said to you! That is unbelievable. I had to pay for a private neurologist and then a private neuropsychiatrist to get my diagnosis as the wait was just so long during lockdown. I am so glad you’re finally getting somewhere and having videos is invaluable. I’ve had FND for 3 years now so if you do want to pick my brain about things I’ve tried then I’m more than happy to help. I am 45 and was medically retired from teaching for about 18 months. Sending big hugs ❤️. Louise

[Dogfreedom in reply to Louiselovesyellow]

Thanks so many people in same vote ,so surprised Doctors said never seen anything like it.

[Hidden]

Bless you. It took me 3 years and 4 Neurologists to finally get a diagnosis in April this year. I have an assessment clinic booked for July. I was questioning whether I was imagining/making in up in the end. Glad you finally found a neurologist that acknowledged the FND x

[Dogfreedom in reply to Hidden]

Yes I felt as if doctors were saying it was fake felt stupid and alone at times,hope you get sorted.

[kev60]

hi, I was diagnosed 19 months after my symptoms started in 2018. I had stroke like symptoms and was in hospital for three days but discharged with no answers. My GP was not happy and got me an emergency appointment with neurologist, but it was actually the neuro-physio that suggested that I could have FND and she put it on her notes and then the neurologist gave me the diagnosis, I then saw another neurologist they agreed with the diagnosis and asked my GP to refer me for PPS (persistent physical symptoms) services (never heard of this) anyway got an appointment after 3 years (2023) was told the assessment would take 3hrs lasted less than an hour my wife was not happy then told it was a multi-disciplinary unit and I would get 12 to 20 sessions with various people, but I got 8 or 9 sessions on line, started with an hour and got shorter and shorter last session was 20 minutes. Now my FND has to be dealt with by my doctor. So it is a post code as to the service you get, I thought as I was in London it would be ok, how wrong I was. So now even though I can’t work I just have to do the best I can. Sorry to go on. Hope you get the help you need. Kevin

[Dogfreedom in reply to kev60]

Shocking how thelp is so varied by Areas they have referred me to talking therapist and hoping they'll help, must say I'm glad not to feel alone not that I wish this on anyone . If ya ever need a chat I'm here.