Intro: Hi all, this is my first post... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,817 members3,083 posts

Intro

2 Replies

Hi all, this is my first post but I am in the 6th year of my condition.

Firstly, I am glad that there is more information around these days for us.

Secondly, I am also fortunate to be not too far away from Dr Edwards and the NHNN UCL of which I have spent a fair amount of time in and completed the multi discipline 4 week inpatient program and have been fortunate enough to have had my brain wave patterns studied ( an interesting finding ).

Also have been tried with most of the usual medication including botox.

My condition started after a medium type rta a bang to my head, swelling and everything else that comes with that.

I cant really say what I think is harder to deal with, either the headpains confusion and disorientation, a medical professional who thinks I am a drunk or the movement disorder, but then everyday is different.

I know roughly what works for me these days, and understand that we all have something in common, but mainly having a loving wife that has been though this with me, an understanding family, a gp that after a fair amount of harassment got me to Dr Edwards MD clinic and of course that man himself.

Thank you for your research, your patience, and your down to earth approach in helping me, over time I have got so much more of my old life back.

Read more about...
2 Replies
VivienneWaterworth profile image
VivienneWaterworth

Hi. Sorry to hear of your diagnosis but glad that Dr Edwards has been able to help you. He has an excellent reputation in this field. I've heard of others having a simple traffic accident, either no injuries or only minor ones, then getting FND.

Have you checked out neurosymptoms.org or fndhope.org ? These two sites have excellent information on them and provide a lot of resources. Also consider joining a Facebook group such as the one listed on the FNDHope website. There are several groups, including this one, that are quite active, others not so active, so choose one that suits you.

in reply to VivienneWaterworth

Hi Vivienne I have read this and refered to this site many times, thank you.

Not what you're looking for?

You may also like...

Beta Blockers on FND

I have been diognosed with FND for quite awhile and see Dr Edwards at St George's. I also have a...

FND has to be GENETIC

I think FND is a genetic defect of the brain that these doctors still haven’t identified because...

Diagnosis Method of Functional Neurological Disorder

My first post, eek! I hope it's useful to someone. Basically I think the article I stumbled on...

Vision problems

Hallo! Thankyou to you all for your posts, they have really helped me. I was diagnosed with fnd...

Don't give up hope everybody

Hello everyone, I know my last post consisted of a rant about FND. Today, I share positive news in...