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FND Action

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My FND story

I've been suffering with Stoke systems of the face and speech for many years now and only found our in march that I had fnd ,its effecting in many different...

I've been suffering with Stoke systems of the face and speech for many years now...

•15 days ago

It's now been 6 months since I last worked.

It's now been 6 months since I last worked at the care home and it's looking more than likely I won't be going back to work .I'm still waiting for a decision...

It's now been 6 months since I last worked at the care home and it's looking mor...

•3 months ago

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New FND Diagnosis

Hi I'm saxcat I have been recently diagnosed with FND I already have Fibromyalgia I'm confused as to how do I know if it's the FND or the Fibro because...

Hi I'm saxcat I have been recently diagnosed with FND I already have Fibrom...

•3 months ago

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Good morning how's everyone doing.

Good morning everyone I'm just checking in on my FND friends and was wondering how everyone is coping with this horrible illness. I'm still struggling with the...

Good morning everyone I'm just checking in on my FND friends and was wondering h...

•3 months ago

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My work capability assessment was cancelled yesterday.

My telephone call for my work capability assessment was cancelled for an unknown reason, just a received a letter so I called them , said didn't need to speak...

My telephone call for my work capability assessment was cancelled for an unknown...

•3 months ago

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My first telephone PIP telephone appointment all done .

My first telephone appointment for pip is all over now its the waiting around game , I've got my work capability assessment on Thursday afternoon 1pm to 4pm...

My first telephone appointment for pip is all over now its the waiting around ga...

•3 months ago

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When your life is taken away from you .

Does anyone ever feel that your life as been stolen from you with FND ,its when you could do the simple things in life that you can no longer do , I can no...

Does anyone ever feel that your life as been stolen from you with FND ,its when ...

•3 months ago

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I have 3 appointments this month .

All my appointments are coming together next week I have a home meeting with compton care nurses who will be trying to support me with this dreadful illness I...

All my appointments are coming together next week I have a home meeting with com...

•4 months ago

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Memory problems

Hi Everyone happy Sunday. I was just wondering how many people suffer with memory issues, everyday my memory seems to get worse, I can't always remember...

Hi Everyone happy Sunday. I was just wondering how many people suffer with memor...

•4 months ago

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What did I do wrong to be like this ?

I often wonder what I did wrong to be like the way I am now , my sleep apnea is hitting me hard I can sleep just anywhere, even in the garden, I try and do...

I often wonder what I did wrong to be like the way I am now , my sleep apnea is ...

•4 months ago

Does anyone suffer with sleep apnea

Good morning everyone I was wondering if anyone else suffers with sleep apnea and fnd , how does it affect your daily activities, I'm so tired I just want...

Good morning everyone I was wondering if anyone else suffers with sleep apnea a...

•5 months ago

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It's been confirmed that I have FND

Good evening everyone It's been confirmed today in writing from my neurologist that I do have FND with bad dizziness and it's down to my employer if I can...

Good evening everyone It's been confirmed today in writing from my neurologist t...

•5 months ago

found a good neurologist

Hi all I’m Back again… Just thought I’d let you know I have found an understanding neurologist who doesn’t blame everything on FND. I have fibromyalgia too...

Hi all I’m Back again… Just thought I’d let you know I have found an understan...

•5 months ago

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Back at the hospital today

Good morning fnd friends My day as finally arrived to see my neurologist I so hope I can get the answers to my questions and a diagnosis and why do I get the...

Good morning fnd friends My day as finally arrived to see my neurologist I so ho...

•5 months ago

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All different systems with fnd

I've seen and read so many different symptoms on here but I never see anyone that suffers with stroke like symptoms my consultant says it could be MG then im...

I've seen and read so many different symptoms on here but I never see anyone tha...

•5 months ago

Work capability assessment

Hi can anyone please give me any tips in doing a work capability assessment at the jobcentre, I've read the questions but none of them seem to affect me with...

Hi can anyone please give me any tips in doing a work capability assessment at t...

•5 months ago

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My symptoms today

Hi Everyone Not feeling so well today my day started with feeling very dizzy then My voice sleared Then left side of face only Then very tired This will...

Hi Everyone Not feeling so well today my day started with feeling very dizzy the...

•5 months ago

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New 6 months fit note

Went to see my doctor yesterday who gave me a new fit note for 6 months also to arrange for a sleep apnea test said I may need to use a CPEP machine so that I...

Went to see my doctor yesterday who gave me a new fit note for 6 months also to ...

•5 months ago

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Does anyone suffer with sleep apnea

Hi all does anyone else suffer with sleep apnea some years ago I was diagnosed with mixed sleep apnea but now I can sleep 24 hours and still need more, it's...

Hi all does anyone else suffer with sleep apnea some years ago I was diagnosed w...

•5 months ago

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Flare up

Good morning! I’m just curious to find out that if you ladies when it’s your time of the month get flare ups with it? I get Fibro flare up but also seems...

Good morning! I’m just curious to find out that if you ladies when it’s your ...

•6 months ago

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What are your symptoms of FND

Morning allCan anyone please tell me what your symptoms of FND and if anyone gets stroke symptoms to the face and talking, everytime I have an attack I'm...

Morning allCan anyone please tell me what your symptoms of FND and if anyone get...

•6 months ago

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Feeling unwell today

Good morning dear FND Friends I just wanted to bring you up to date on how things are going, I was at A&E twice last week with same symptoms as a stroke...

Good morning dear FND Friends I just wanted to bring you up to date on how thing...

•6 months ago

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Not feel towell today

Good afternoon all Today is a bad day I feel so tired and like my head is floating I can't get my words out feel so confused I don't know who to turn to for...

Good afternoon all Today is a bad day I feel so tired and like my head is floa...

•6 months ago

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Does anyone suffer from dizziness

Good evening Does anyone suffer with dizziness with FND I get it everyday my medication as run out but my doctor want give me anymore I struggle daily any...

Good evening Does anyone suffer with dizziness with FND I get it everyday my m...

•6 months ago

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Feeling very dizzy today

Good afternoon everyone Hope you are all enjoying your weekend. I'm feeling very dizzy and so tired today which isn't a good sign for me I just know I'm going...

Good afternoon everyone Hope you are all enjoying your weekend. I'm feeling ver...

•6 months ago

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Have a bostin weekend

Have a great weekend dear friends

Have a great weekend dear friends

•6 months ago

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Swallowing problems

HiDoes anyone have an issue with swallowing. I've been told my muscles in my throat spasm causing me to vomit 2/3 times a week. I am hardly eating anything...

HiDoes anyone have an issue with swallowing. I've been told my muscles in my th...

•6 months ago

Depression/anxiety

Good morning NFD friendsMy doctor tells me i have NFD and I have have had tests for dizziness but I have not had any tests would this be from the condition?...

Good morning NFD friendsMy doctor tells me i have NFD and I have have had tests ...

•6 months ago

Does anyone claim benefits with fnd

Hi all I was wondering if anyone as manged to claim any benefits with fnd if you can't work and company want let you on the premises for your own safety.

Hi all I was wondering if anyone as manged to claim any benefits with fnd if you...

•6 months ago

Feeling strange today

Good morning all Today I'm struggling head feels empty struggling to get my words out and very tired , my symptoms are pulling me down everytime I have a good...

Good morning all Today I'm struggling head feels empty struggling to get my word...

•6 months ago

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