Posts - FND Action | HealthUnlocked

FND Action

658 members • 184 posts

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found a good neurologist

Hi all I’m Back again… Just thought I’d let you know I have found an understanding neurologist who doesn’t blame everything on FND. I have fibromyalgia too...

Hi all I’m Back again… Just thought I’d let you know I have found an understan...

•2 days ago

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Back at the hospital today

Good morning fnd friends My day as finally arrived to see my neurologist I so hope I can get the answers to my questions and a diagnosis and why do I get the...

Good morning fnd friends My day as finally arrived to see my neurologist I so ho...

•3 days ago

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All different systems with fnd

I've seen and read so many different symptoms on here but I never see anyone that suffers with stroke like symptoms my consultant says it could be MG then im...

I've seen and read so many different symptoms on here but I never see anyone tha...

•13 days ago

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Work capability assessment

Hi can anyone please give me any tips in doing a work capability assessment at the jobcentre, I've read the questions but none of them seem to affect me with...

Hi can anyone please give me any tips in doing a work capability assessment at t...

•13 days ago

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My symptoms today

Hi Everyone Not feeling so well today my day started with feeling very dizzy then My voice sleared Then left side of face only Then very tired This will...

Hi Everyone Not feeling so well today my day started with feeling very dizzy the...

•18 days ago

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New 6 months fit note

Went to see my doctor yesterday who gave me a new fit note for 6 months also to arrange for a sleep apnea test said I may need to use a CPEP machine so that I...

Went to see my doctor yesterday who gave me a new fit note for 6 months also to ...

•22 days ago

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Does anyone suffer with sleep apnea

Hi all does anyone else suffer with sleep apnea some years ago I was diagnosed with mixed sleep apnea but now I can sleep 24 hours and still need more, it's...

Hi all does anyone else suffer with sleep apnea some years ago I was diagnosed w...

•23 days ago

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Flare up

Good morning! I’m just curious to find out that if you ladies when it’s your time of the month get flare ups with it? I get Fibro flare up but also seems...

Good morning! I’m just curious to find out that if you ladies when it’s your ...

•26 days ago

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What are your symptoms of FND

Morning allCan anyone please tell me what your symptoms of FND and if anyone gets stroke symptoms to the face and talking, everytime I have an attack I'm...

Morning allCan anyone please tell me what your symptoms of FND and if anyone get...

•1 month ago

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Feeling unwell today

Good morning dear FND Friends I just wanted to bring you up to date on how things are going, I was at A&E twice last week with same symptoms as a stroke...

Good morning dear FND Friends I just wanted to bring you up to date on how thing...

•1 month ago

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Not feel towell today

Good afternoon all Today is a bad day I feel so tired and like my head is floating I can't get my words out feel so confused I don't know who to turn to for...

Good afternoon all Today is a bad day I feel so tired and like my head is floa...

•1 month ago

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Does anyone suffer from dizziness

Good evening Does anyone suffer with dizziness with FND I get it everyday my medication as run out but my doctor want give me anymore I struggle daily any...

Good evening Does anyone suffer with dizziness with FND I get it everyday my m...

•2 months ago

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Feeling very dizzy today

Good afternoon everyone Hope you are all enjoying your weekend. I'm feeling very dizzy and so tired today which isn't a good sign for me I just know I'm going...

Good afternoon everyone Hope you are all enjoying your weekend. I'm feeling ver...

•2 months ago

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Have a bostin weekend

Have a great weekend dear friends

Have a great weekend dear friends

•2 months ago

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Swallowing problems

HiDoes anyone have an issue with swallowing. I've been told my muscles in my throat spasm causing me to vomit 2/3 times a week. I am hardly eating anything...

HiDoes anyone have an issue with swallowing. I've been told my muscles in my th...

•2 months ago

Depression/anxiety

Good morning NFD friendsMy doctor tells me i have NFD and I have have had tests for dizziness but I have not had any tests would this be from the condition?...

Good morning NFD friendsMy doctor tells me i have NFD and I have have had tests ...

•2 months ago

Does anyone claim benefits with fnd

Hi all I was wondering if anyone as manged to claim any benefits with fnd if you can't work and company want let you on the premises for your own safety.

Hi all I was wondering if anyone as manged to claim any benefits with fnd if you...

•2 months ago

Feeling strange today

Good morning all Today I'm struggling head feels empty struggling to get my words out and very tired , my symptoms are pulling me down everytime I have a good...

Good morning all Today I'm struggling head feels empty struggling to get my word...

•2 months ago

Stroke like symptoms

Good evening all Well I was back at A&E last Wednesday with stroke like symptoms yet again my symptoms are becoming more regular and lasting a lot longer ,this...

Good evening all Well I was back at A&E last Wednesday with stroke like symptoms...

•2 months ago

Education Group

Hi. I've been invited to a Virtual FND General Education Group, organised by South London and Maudsley NHS Foundation Trust who work closely the Neurology...

Hi. I've been invited to a Virtual FND General Education Group, organised by Sou...

•2 months ago

Tracey0101

Also forgot to mention that in 2021 I was in hospital for a few days because I went to see my Doctor who sent me up the hospital with a suspected stroke and...

Also forgot to mention that in 2021 I was in hospital for a few days because I w...

•2 months ago

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Tracey0101

I didn't spot all these symptoms before now all my muscles have tightening up and squashing me up like a someone rough with me and closing in on me that I...

I didn't spot all these symptoms before now all my muscles have tightening up an...

•2 months ago

Tracey0101

I'm not that well at the moment and I'm still waiting to see a Neurologist been waiting since September 2023 for a proper appointment date as I have a dummy...

I'm not that well at the moment and I'm still waiting to see a Neurologist been ...

•2 months ago

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Can you loose your voice with FND

As I lost my voice because my muscles have tighten up inside my jaw and my jaw feels heavy

As I lost my voice because my muscles have tighten up inside my jaw and my ja...

•2 months ago

Hello

Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. Here is my original post. Hello Everyone,I have just joined this group and...

Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. ...

•2 months ago

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About FND does your brain change with the signals how we receive pain and temperatures

I have had symptoms of FND since 2020 to do with a big knock of change of how my brain worked normally before the stressful event that ended up in traumatised...

I have had symptoms of FND since 2020 to do with a big knock of change of how my...

•2 months ago

Maybe service dog?

I have had FND for almost 5 years and even though it got a bit better it still causes struggles like twitches, memory issues, and other problems. One thing...

I have had FND for almost 5 years and even though it got a bit better it stil...

KaitieWithFourEyes

•2 months ago

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Still awaiting ENG appointment and bloods for FND

Good afternoon everyone ( friends ). How's everyone doing today hopefully you are having z good day . I phoned my local hospital today checking on my ENG...

Good afternoon everyone ( friends ). How's everyone doing today hopefully you ar...

•3 months ago

Feeling low today

Good morning all Hope you all had a good Estate Weekend. I feel so low today just want to sleep and have a good cry but men Don't cry everything is getting...

Good morning all Hope you all had a good Estate Weekend. I feel so low today ju...

•3 months ago

Happy Easter

Hi Everyone Sending you all a happy easter wish .

Hi Everyone Sending you all a happy easter wish .

•3 months ago

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