Posts - FND Action | HealthUnlocked

FND Action

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Tracey0101

Also forgot to mention that in 2021 I was in hospital for a few days because I went to see my Doctor who sent me up the hospital with a suspected stroke and...

Also forgot to mention that in 2021 I was in hospital for a few days because I w...

•8 hours ago

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Tracey0101

I didn't spot all these symptoms before now all my muscles have tightening up and squashing me up like a someone rough with me and closing in on me that I...

I didn't spot all these symptoms before now all my muscles have tightening up an...

•9 hours ago

Tracey0101

I'm not that well at the moment and I'm still waiting to see a Neurologist been waiting since September 2023 for a proper appointment date as I have a dummy...

I'm not that well at the moment and I'm still waiting to see a Neurologist been ...

•9 hours ago

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Can you loose your voice with FND

As I lost my voice because my muscles have tighten up inside my jaw and my jaw feels heavy

As I lost my voice because my muscles have tighten up inside my jaw and my ja...

•1 day ago

Hello

Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. Here is my original post. Hello Everyone,I have just joined this group and...

Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. ...

•2 days ago

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About FND does your brain change with the signals how we receive pain and temperatures

I have had symptoms of FND since 2020 to do with a big knock of change of how my brain worked normally before the stressful event that ended up in traumatised...

I have had symptoms of FND since 2020 to do with a big knock of change of how my...

•10 days ago

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Maybe service dog?

I have had FND for almost 5 years and even though it got a bit better it still causes struggles like twitches, memory issues, and other problems. One thing...

I have had FND for almost 5 years and even though it got a bit better it stil...

KaitieWithFourEyes

•13 days ago

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Still awaiting ENG appointment and bloods for FND

Good afternoon everyone ( friends ). How's everyone doing today hopefully you are having z good day . I phoned my local hospital today checking on my ENG...

Good afternoon everyone ( friends ). How's everyone doing today hopefully you ar...

•1 month ago

Feeling low today

Good morning all Hope you all had a good Estate Weekend. I feel so low today just want to sleep and have a good cry but men Don't cry everything is getting...

Good morning all Hope you all had a good Estate Weekend. I feel so low today ju...

•1 month ago

Happy Easter

Hi Everyone Sending you all a happy easter wish .

Hi Everyone Sending you all a happy easter wish .

•1 month ago

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Newly diagnosed with FND

Good morning everyone I'm now on here and I'm hoping I can get some answers to FND .0 I've been suffering with stroke like symptoms on a regular basis with my...

Good morning everyone I'm now on here and I'm hoping I can get some answers to F...

•1 month ago

FND Masterclass

Re+active Therapy and Wellness, which is an excellent source of information on FND is hosting FND Masterclass -Take Control of your Symptoms Thursday,...

Re+active Therapy and Wellness, which is an excellent source of information on ...

•3 months ago

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FND diagnosis

So I have had a long battle with getting to the bottom of my problems and on Tuesday I finally got all confirmed.I have been having symptoms for around 6 years...

So I have had a long battle with getting to the bottom of my problems and on Tue...

•3 months ago

assessment too late for blue badge

Hi everyone Does anyone know how to get a blue badge renewed if the pip assessment hasn’t been decided before the blue badge runs out? I’m quite concerned as...

Hi everyone Does anyone know how to get a blue badge renewed if the pip assess...

•3 months ago

Confused

Hello My name is Nicole and I have been struggling with problems walking, tremors, chronic fatigue, insomnia, body jerks, memory and concentration. I went to...

Hello My name is Nicole and I have been struggling with problems walking, tremo...

•4 months ago

FND + dizziness

My husband was diagnosed with FND in 2020, and has recently begun to experience intense dizziness. It started out as a moderate symptom that would come and go....

My husband was diagnosed with FND in 2020, and has recently begun to experience ...

•6 months ago

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Not Convinced of Diagnosis

I'm new here. I was diagnosed with FND back in June by a neurologist. Except I'm not convinced of the diagnosis. Most of my symptoms point towards nerve damage...

I'm new here. I was diagnosed with FND back in June by a neurologist. Except I'm...

•7 months ago

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Newly diagnosed with FND

Received EEG results yesterday . Neurologist finally confirms diagnosis of Functional Neurological Disorder (FND) with paroxysmal non-epileptic events. Being...

Received EEG results yesterday . Neurologist finally confirms diagnosis of Func...

•8 months ago

Home video Ambulatory Electroencephalogram

Since my follow up with Neurologist with possible FND diagnosis, I have received an appointment to attend for a 24/48 hour HVA EEG. I’m interested to know who...

Since my follow up with Neurologist with possible FND diagnosis, I have received...

•10 months ago

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Tension headache with FND diagnosis and possible PLM /RLS

Further to my original post I have since had my brain MRI and follow up appointment for the results At that appt I saw a completely different Neurologist , a...

Further to my original post I have since had my brain MRI and follow up appointm...

•11 months ago

New diagnosis

I was diagnosed with FND 8 months after a hospital visit for numbness and tingling down my left side. Having woken from sleep thinking I had slept funny and...

I was diagnosed with FND 8 months after a hospital visit for numbness and tingli...

•11 months ago

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Possible FND diagnosis , any advice please 🙏

Yesterday I saw a Neurologist after an 18 month wait since referral. From my symptoms, an examination of reflexes, co-ordination and exclusion of other...

Yesterday I saw a Neurologist after an 18 month wait since referral. From my s...

•1 year ago

Neuropsychology for NEAD

Good morning everyone, I’ve recently been diagnosed with Non-Epileptic Attack Disorder (UK) and been advised by the neurologist the treatment for this is...

Good morning everyone, I’ve recently been diagnosed with Non-Epileptic Attack...

NEADtoraiseawareness

•1 year ago

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Hello all sinus problem???.

Hello. I have had FND diagnosis since 2016 and had symptoms get progressively worse since then. Bilateral Twitching and numbness. Trouble with right eye...

Hello. I have had FND diagnosis since 2016 and had symptoms get progressively ...

•1 year ago

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HAD A FIT

I HAVE HAD A NON EPELECTIC SEZUIRE TODAY AND COLLAPSED N MY FRONT GARDEN I WAS ONLY OUT FOR A COUPLE OF MINUTES, BUT SHOULD I GO TO A AND E,

I HAVE HAD A NON EPELECTIC SEZUIRE TODAY AND COLLAPSED N MY FRONT GARDEN I WAS O...

•2 years ago

Hi everyone.

Hi all, I've only just discovered this community. I've been struggling with FND since 2016, and also have Fibro. I haven't got a question yet, just thought...

Hi all, I've only just discovered this community. I've been struggling with FND ...

•2 years ago

yet another med!

my daughter who is 44 has had personality disorder problems since the age of 16. However she has managed a marriage and bringing up two teenage boys . She is...

my daughter who is 44 has had personality disorder problems since the age of 16...

•2 years ago

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Anyone experience temperature dysregulation or unilateral flushing as part of their FND?

Hey all, Has anyone had experiences with their temperature regulation getting messed up with FND? Below I wrote out what I'm experiencing. Just unsure if it's...

Hey all, Has anyone had experiences with their temperature regulation getting me...

•2 years ago

Newbie

Hi,I'm new here,my autistic daughter was diagnosed with FND in October 2021,so this is all relatively new to us.I had never heard of FND until the diagnosis...

Hi,I'm new here,my autistic daughter was diagnosed with FND in October 2021,so t...

•2 years ago

Interesting FND study recruiting now

SCREENING OF AUTISTIC TRAITS IN PEOPLE WITH FUNCTIONAL NEUROLOGICAL DISORDERS The following validated questionnaire is a preliminary screening of autistic...

SCREENING OF AUTISTIC TRAITS IN PEOPLE WITH FUNCTIONAL NEUROLOGICAL DISORDERS Th...

•2 years ago

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