What did I do wrong to be like this ? - FND Action

FND Action

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What did I do wrong to be like this ?

Littlecook profile image
2 Replies

I often wonder what I did wrong to be like the way I am now , my sleep apnea is hitting me hard I can sleep just anywhere, even in the garden, I try and do things in the garden/ house I feel like I'm going to hit the ground, my wife is so scared that I'm going to fall over so she is constantly watching me when she should be working .This is not the life I want I just want to be normal again and have a life , its just been snapped from me like many on here .

But how do you all cope with everyday things , if I'm cooking tea I know my wife is watching me use knives I know she is scared, I just want to be normal.

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Littlecook profile image
Littlecook
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LilyMarshell profile image
LilyMarshell

Constant supervision is my life, has been for 4 years now. The only time I'm alone is when I'm using the bathroom, and that's only because I tell my partner to leave the room.

If your sleep apnea is causing issues, when was the last time you had a CO2 test? Just suggesting it as my father was having similar issues of just passing out, turns out he had a CO2 build up that the CPAK wasn't coping with due to a faulty tube, so they gave him the stronger machine and had him on it for a week straight.

Littlecook profile image
Littlecook in reply to LilyMarshell

Good morning Lily Thank you for your message , I had an over night test last week but can take upto 12 wks for any results.

I'm beginning to release that I'm not a lone with this illness, I've just registered with compton neuro support in Wolverhampton so hopefully I will here something very soon .

You take care of your self .

Littlechef

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