I've been suffering with Stoke systems of the face and speech for many years now and only found our in march that I had fnd ,its effecting in many different ways ,I'm probably one of the lucky one's I don't have pain only mentally. I also suffer from NF1 that's given me cancer twice that grow on your nerve system. I've spoken to my doctor about my dizziness and she said you have had all the tests its fnd and I can't do anything. As most of you live with pain I've got the dizziness and memory lose that seems tobe getting worse.
I will support everyone the best way I can with this nasty condition.