My FND story

[Littlecook]

I've been suffering with Stoke systems of the face and speech for many years now and only found our in march that I had fnd ,its effecting in many different ways ,I'm probably one of the lucky one's I don't have pain only mentally. I also suffer from NF1 that's given me cancer twice that grow on your nerve system. I've spoken to my doctor about my dizziness and she said you have had all the tests its fnd and I can't do anything. As most of you live with pain I've got the dizziness and memory lose that seems tobe getting worse.

I will support everyone the best way I can with this nasty condition.

[Hayleyvw81]

Hello . I also have nf1 . It isn't so bad in my younger years . Mids 20s is when it started to get worse . Now im 43 and I am having bad social anxiety. I prefer to just be at home and not doing all the things I used to like