I was diagnosed with fibro 20 years ago, handed an information leaflet, told that there is no treatment for the condition, just management of symptoms. and wished the best of luck..
Since then, although I can now make sense of some of the multitude of symptoms that had barraged me for years, and I have read sooo much information about the many and varied way that fibro can affect those who have it, I still have so much confusion.
For instance: I find that there are certain times where even with my glasses, my vision is blurred and unfocussed. I know that sometimes that happens when I an fatigued: but it happens very often when I am in the middle of a flare up. I have read conflicting information which tells me that this both is, and isn't a fibro symptom.
I have the fibro pain and burn that I recognise: then i have other. sharper, stronger pain in my joints which again both is and isn't recognised as a fibro problem. attempting to talk with the GP's at my surgery about this obviously meets with different reactions, as while some are sympathetic, they don't feel they can offer any help: others don't recognise fibromyalgia as a 'legitimate' diagnosis and offer treatment for neurosis.. and others offer medications that are more usually given for the treatment of psychosis.
I DO also have a rare mental health condition which can further complicate things by masking symptoms, or making them disappear altogether.. I have NO idea who to talk to about at least getting on top of the constant and severe flareups..