Hi DLA advice needed please - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hi DLA advice needed please

Hilly profile image
5 Replies

i get lrm and lrc DLA at the moment but since this was awarded last year my conditions have got alot worse. My question is do i apply again or do i just ring up and tell them my conditions are now worse, any help would be brill thanks

Hilly xx

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Hilly profile image
Hilly
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5 Replies

You have to reapply and hope that they agree and don't drop you down or take it off you altogether, sorry for such a negative response but that has been the experience of many people receiving dla on here. I am in the process or renewing as its actually my time to renew and my needs have changed but I am bracing myself for an unwelcome decision and find myself hoping for low rate care which I get at the moment although I need some mobility

VG x

donna67 profile image
donna67 in reply to

Same hear I rang them and told them my meds had change for stronger they asked me if I needed more help I declined as know alot people need help (didn't want to hog alot people in pain and need help) week after got a new form and that was put in beginning of jan now there asking alot questions so been truthful received another letter saying sorry there still looking into it and now have a letter saying got appointment to see a disability dr end march witch I really don't mind but wondering if not to take my meds so he see really how much I do suffer and like you I'm bracing myself I think goverment are hitting the wrong people :( I feel very sad not just for me but others that are worse and not just those with fibro hang in there Hunni like very grumpy said dont think your get it and if you do it's a help chin up fibro hugs x

Mdaisy profile image
Mdaisy

Hello Hilly,

If you haven't done so already FibroAction can send out the Benefits & Work Guides for free if you email: info@fibroaction.org . They contain information on benefits, appeals and medicals.

Here's a link to the Benefits & Work site

benefitsandwork.co.uk

I hope this is of help

Emma

Hilly profile image
Hilly

thanks for your replies, i will email for the guides now.

Hilly xx

ellie172825 profile image
ellie172825

I was awarded the lower Mobility rate, I then was Diagnosed with FM, I notified them of this diagnose and the change of my circumstances, and I lost the award completely. MADNESS !!!!!!

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