Do admin people suffer Fibro??? Do th... - Fibromyalgia Acti...
Do admin people suffer Fibro??? Do they join in asking questions of the other members or have they set themselves as the authority??
Hi Jeannie,
Thank You for your question.
I myself have had Fibromyalgia for 6 years , feel free to look at my profile to get to know me a little if you wish. I have been on HU since February 2012 and if you look at my activity I have posted many posts as a member before I briefly did not visit as much, as I was busy setting up a local support group (Est May 2012). That is now up and running with members reporting it's success, I am glad to say. I have recently become a member of the Admin team and have been back here for about a week since joining the FibroAction team.
We would live to envisage us all as a community (members , volunteers and admins) are we are all here because we live with Fibromyalgia. Using the forum to discuss living with the symptoms that affect our abilities to maintain activities of daily living that healthy people may take for granted sometimes, is why in this forum we should all support each other.
We, the FibroAction team try to advise you to the best of our abilities providing information and signposting you to the Health Professional when necessary, websites that are reputable and try to discourage other unrecognised sources where possible.
I hope this has answered your question and do take a look at my updated profile
Best Wishes
Emma
Hello Jeannie
Yes Admins do have Fibromyalgia and other conditions too sometimes. We are all here to help and support our members in the best way we can. We have personal experience of many things associated with Fibromyalgia too and can draw from this experience in empathy with our members.
We do not set ourselves up as the authority as we always say that we are no replacement for advice from medical professionals and we always strongly advise that members consult their GP's and Consultants if they have any concerns. We also advise contacting NHS Direct, the CAB and any appropriate organisations if we think this is the right help and support for them.
We are here purely in support, to increase Fibro awareness and to ensure our members don't feel isolated and alone when there is understanding and other Fibromites here, including ourselves.
I hope this reply helps in your understanding of our position as Admins here. 
If you have any concerns, we are always only too happy to try to help in any way we can.
Best wishes.
Liberty
Admin
I have had Fibromyalgia for over four years now, I also have CFS/ME and RLS and Osteoarthritis. Please take a look at my profile for more information about me if you wish.
Hi there
Just wanted to say I joined this group in August after suffering 10 years off Fibro and this site has helped me more than anything , u can get up to date advice, support from people who understands more than anyone what it's like, how hard it can be , and how can we fight it. U can even tx talk to people 24/7 as there's plenty of us up at all hours, it saddens me thou to actually see how many it affects , we must make people more aware of it to hopefull stop it. So thank u everyone on hear for helpin and makin livin with Fibro more manageable . Take care Michelle
Thanks Michelle! That means a lot.
I've had Fibro since 2002. My Fibro was severe, but is now in remission after years of heavy duty treatment (meds, physio, pacing, the works...). My profile is here: fibroaction.healthunlocked....
All the Admin's profiles can be seen in the Directory: fibroaction.healthunlocked....
I founded FibroAction in 2008 and have been the Information Manager for most of that time. I've been fortunate to not only have a reason to look into the research on Fibro, but also to meet with, and discuss Fibro with, some of the world's top experts in the condition. I've gained a lot of knowledge and can answer many questions, but I don't know if you'd call me an "authority"! I'm not a doctor, and have just learnt with the "job".
Wow that's great this site had been round longer than I thought , u don't have to be a doc to be an expert on Fibro , my gp told me at first diagnosis u arnt just now but research and learn about Fibro as at the end of the day I will eventually have more knowledge understanding of Fibro and although we maybe don't understand the science of Fibro , but we all have more expertise in Fibro than anyone else. Thank you all for set up Fibro so we all can learn and grow stronger to fight Fibro . Take care Michelle
It's a pleasure having you with us here at FibroAction Michelle, I hope you enjoy your time with us!
Hi Michelle
FibroAction has been running since 2008, but we only started this FibroAction.HU community in January
The main website is here: fibroaction.org
What a lovely thread !
A chance for you all to get to know us more and we can get to know you too !
Thank You for the kind words
Emma
Yes I agree Emma!
It's also a great idea for our lovely members to see that we actually suffer from the same and we do really understand!
We quite literally feel their pain, so we know what it all feels like, the spasms, the shooting pains, the aches, the sleepless nights, the fatigue and exhaustion, we feel it all folks!
Best wishes.
Libs
I also agree with everyone here. This site has been sooo uplifting and helpful. Seeing what other people suffer with makes me feel I'm not alone. Looking at other people's symptoms too is helpful. When I see what symptoms others have I realise that I have them too and that it's all down to this dreaded Fibro. Long live this site and thanks to all admin et al for their continuing support and advice. XXXXX
It really is our pleasure Sue, we are here to help and we honestly understand. I think that makes all the difference. So often people try to help and they haven't a clue about what members are feeling. We really do because we go through it ourselves, we have flare-ups, we have it all!
It's lovely having you here with us!
Thank you for your kind words, it means a lot to us to have feedback from our members. xxx
Yup I tried three other fibro sites, one was mainly US based one was incomprehensible to me and the other was plain weird, this is by far the easiest to use and there are always people around to help and all the admin and volunteers are great
VG x
Thanks VG, it's a pleasure having you, Sue and all our members here with us! xxx
Never tried any other fibro sites. I am one of those people that hit the first link they find and here I am. I would not go to another site now, too many good folks here xxxxx
Thanks so much Ozzy, great to have you here with us! xx
