Is there a link between fibro mnd and as ?

[Prickly]

[julieevh]

Forgive my ignorance. What is MND and AS?

xx

[Prickly in reply to julieevh]

motor neuron disease and Aspergers syndrome my mum had one and my son has the other and I have fibro as well as a many other things.

[eranox]

They is a thread about FM and AS.. quite a few of us have had asperger kids.

Hopefully you can track that thread down.

Gx

[diane63]

my god someone who i feel i can connect with.. here is my story... what do u think now...

in 1979 my mum died off motor neuron diesease and then her brother died of it a few years later then my mums sister my dear aunt died off it last year... in my heart i hope i dont have it. but deep in my head i feel is this fibromylagia which ihave been diagnosed for 5 years now, is it mnd... i did go to get tested to see if i had the gene. but when my husband was due to come to he did not want to so i did not go back.. but i want to.. i want to know if i have the gene or if it will pass to my family..... i can feel for u..what ur going through.... if u want to talk to me at all .. just get intouch ok xxx

[deatay1 in reply to diane63]

I know this is quite an old post but this is exactly what I'm wondering. I was brought up by my paternal Grandparents who both died from MND, my Grandad in 1989 and my Grandma in 1994. It was unheard of for both Husband and Wife to have it. Forward to 2010 when I was 28 and I had gradual onset of issues, so many different symptoms and after a lengthy battle and many referrals I was diagnosed with Fibromyalgia in 2014. I've read quite a lot of articles since then and in the back of my mind I wonder if in some way my diagnoses is in any way linked to their MND? I have tried to broach the issue with both my rheumatologist and neurologist but don't get any further. My rheumatoligist is adamant that my fibromyalgia is curable but I have only seen a worsening in my symptoms despite doing everything recommended to me, I am also taking back up swimming which has been advised following recent hydrotherapy sessions but I just feel in mind, body and soul trapped

[Vtb1 in reply to deatay1]

I too was diagnosed with fibromyalgia in 2015, though I was told we can stabilise it but it will always be there, would love to hear any doc/specialist who says it’s curable I.e, yours believes so?

[eranox]

I tracked it down.. well it is easy when you know how and I have just learned how to lol

fibroaction.healthunlocked....