There are the cynics, the well meaning offerers of advice and cures, and the bewildered. . . . whenever I try to explain why I feel 'challenged' to stay awake or alert, and why I need to rest. My current counsellor says 'fatigue' is a word that, in her experience of working with FMS/CFS sufferers, just doesn't explain what the feeling is. Fatigue is something people recover from - but I have just never recovered fully from my fatigue, but neither do I seem to express this to the said cynics, etc. etc. One of my closest friends seems to be having a really difficult time 'getting' what I am saying when I say I couldn't do what I used to do. She immediately said - 'that is what your problem is' i.e. I don't believe I can do it anymore, therefore not trying hard enough, or its just mind over matter etc etc. I found this so upsetting, frustrating, and hurtful, that I had a bit of an outburst and have been stressing about it ever since. (Sunday) She believes I am de-energised by job ..... and that is my problem - if I had a different job I wouldn't be ill any more......... So in what words do we use to keep it brief, and to the point. In work when I have to say - I need to take a rest - I have a condition that ....... what????? In social situations - I have experienced 'party pooper' syndrome because I won't join in with drinking bottles of wine etc. I read on other blogs that some carry a written paper with them - should people ask ... I wondered what it says?
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