time for action: Ive already emailed my... - Fibromyalgia Acti...

Fibromyalgia Action UK

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time for action

19 Replies

Ive already emailed my mp Mark Tami, so now Im going to the top, I sick of taking everything lying down re DLA

camerond@parliament.uk

19 Replies
beth2 profile image
beth2

good luck lally love beth

fairytails profile image
fairytails

Wouldnt be a bad idea if everyone from here sent him an email actually! im going to now i have this addy! ......thats if he hasnt forgotten where his email add and computer is!!!;)

I tried him lally , got no reply. I also e-mailed Miliband to ask what his policy on welfare reforms would be if his party gets in next time. No reply .

Apparently we don't matter , they are far too busy to answer those who's lives they are destroying.

be interested to know if he responds to you.

xx

Ill make sure we matter, why the hell should genuine people be treated like this, the stories Ive read on here are heartbreaaking,if we lie down and take it we ll get no help, david cameron claimed dla for his disabled son, why the hell cant we get ours, welfare policy , its a damn witch hunt, its discrimination against the disabled

I've just emailed him again , I'll PM you a copy of what I sent.

xx

Sent PM lally, have a look and see what you think. I've copied and pasted my e-mail to Cameron . I've had an automated response........probably all I will get .

Oh guess what ? Automated response says that email address has been suspended because mr cameron is now the prime minister ! Grrrrrr

Instead you have to go to contact no 10 site and use their contact button, or write by post .

number10.gov.uk/contact-us/

No doubt cameron will never even get to read it .

Butterfly54 profile image
Butterfly54

Is there any way that we AND perhaps other fibro site`s can`t all get together and petition these B******S.

There has to be something we can do.As Lally so rightly says it is a witch hunt and discrimination.

Sick of feeling we are the little people who can be stamped on.

Hugs Butterfly 54xxxxxx

Butterfly54 profile image
Butterfly54 in reply to Butterfly54

As P.S look at the popular posts on the right and read LindsyMid`s blog

very interesting.

Butterfly54xx

kaz17 profile image
kaz17

Its what we need someway of petitioning for fibro we seem t

o be forgotten let's hope someone has the know how to get this started.

Karen x

lyn-elliott profile image
lyn-elliott

i hope we can do something for fibro sufferers read my blog upset and frustrated

hulya profile image
hulya

Welfare Reform!!

warm front (disaster front!!) created planed by the decc.to cheat vulnerable people. ministers are hoovering milyons of pounds via schemes, projects,and under the name of aids to the poor cauntrys. the people who are on dss benefits forced thereatened to sign documants and pay hundreds of pounds to warm front their appl. canceled after kept 12 months waiting, when they refuse to pay money, in the frosty cold . decc. ambushed to cower up all the complaints

dentists are damaging healthy teeth and gum to extend the work to get more money. vulnerable unemployed disable people are forced threatened to pay £100.00 each time. even though dental treatments are completely free for these people. complaints to nhs. department of health DPB, ambushed to cower up they are backed by the ministers. dentists must be making good amount of donations to the winning party to get backed. dentists always claiming gum disease after they damage healthy teeth and gum, when complained by the patients.

one more thing; we are force to get registered with a dental surgery's, by the law!!!! there is no dental hospital treatment, we have to be referred by the dental surgeries.

the law is trapping and forcing people to get tortured and robed at the dental surgeries.

British gas damaged my warm air gas central heating and asked me to pay £ 800.00 . it was working very well only a bit slow. engineer shut it up completely in front of my eyes! I was left in the frosty cold -4 degrees. complaints twisted in a sickening way to cower up.

Welfare Reform. we are robed, butchered every where for money. there is a long list to tell about them. Ministers are cheating us at the first hand for money.

The low is made to back dishonest criminal people who makes donations to the winning parties. The other countries are even worse!

Its like everything is planed, aggressive, money thirsty predators to survive only, like in the jungle!!

Tibby3a profile image
Tibby3a

Hi all

One way to get a chance to put a case forward, is a petition, but it has to be worded right.

what is it we are trying to get an answer on, or someone to take the case of DLA in respect of fibro forward.

One website is eptitions

epetitions.direct.gov.uk/

1. create a petition

2. get it out to as many people as we can to sign it (facebook is one way)

in reply to Tibby3a

A petition is a good idea.

You have to get a minimum number of signatures (is it 100,000?) to get it considered.

So the wording would have to be very clear, so that a) it doesn't alienate potential supporters and b) it gets the message across powerfully and clearly once it reaches the magic number.

Your question about what it is we are trying to get an answer to is very relevant. Everyone has their own individual idea and it would need someone to consult, draft, consult etc and organise it, to take it forward.

I wonder if anyone with FM has that energy and concentration?

xx

dottiedog profile image
dottiedog in reply to Tibby3a

hey Tibby3a have just check this site out & signed 3 petions!

dottiedog profile image
dottiedog

Go lally x has anyone signed petion Change DWP Medicals for Fibromyalgia Syndrome gopetition.com? saw it on face book & clicked on . it was set up by ClaireSparey ino 20/04/11 & has 3855 signatures. Hope it's still active as I clicked to sign it.

What do you all think?

soft hugs xxx dottiedog

Butterfly54 profile image
Butterfly54 in reply to dottiedog

Hi dottiedog,I`ve just signed.

I don`t know how to put links up but maybe if you do a blog with this one,telling people to put fibromyalgia in the search bit.Me and my brain had a hard job finding it.

Love hugs and more power to our elbows,fellow fibromites.xxxxx

dottiedog profile image
dottiedog in reply to Butterfly54

Yes indeed Butterfly54 have put up new blog re petitions as I looked at the next site that Tibby3a suggested & have singned 3 more petitons!

Hope folk will have a look at the Petitions!

will put up a question too

soft hugs xxx dottiedog

dottiedog profile image
dottiedog in reply to Butterfly54

check out new blog Petitions

soft hugs xxx dottiedog

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