Cfs clinic today: Hi everyone, I am... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Cfs clinic today

jazher profile image
16 Replies

Hi everyone,

I am off to my first cfs clinic today, i just hope they are nice and help me. I am so nervous, i dont know what to expect.

I will not be around today but hopefully i will be able to come on tonight and let you all know how it went.

If i am too ill i will see all you lovely people tomorrow. :)

hugs, kel xxx

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jazher profile image
jazher
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16 Replies

good luck i hope it can be of some help, the phycholigist I see runs our local cfs clinic, he just spoke about my symptoms at my first visit, he also runs a support group but Ive never been well enough to join

jazher profile image
jazher in reply to

Thankyou lally,

If its a support group then i dont know how i will get there as its 45 mins away, not on a decent bus route neither. M y partner has had to take a holiday from work to get me there today and cant take loads of time off.

I will let you know how i get on.

hugs, kel xxxx

susie59 profile image
susie59

i hope you get a lot out of it, of course they will be nice to you,:) love and hugs .xx

jazher profile image
jazher in reply to susie59

Thankyou susie,

I dont know why i am stressing, its so not like me at all.

hugs, kel xxxx

Butterfly54 profile image
Butterfly54

Hi Kel,hun it`s just fear of the unknown.But best of luck anyway.

Love Jayne xxxxx

jazher profile image
jazher in reply to Butterfly54

Thankyou jayne xxxx

lynz profile image
lynz

good luck kel make sure you let us know how get on ,hugs xxx

jazher profile image
jazher in reply to lynz

I will lynz thankyou xxxx

Hope you're ok Kel and it went well. xxxx

jazher profile image
jazher in reply to

Thankyou sue, i am fine. :) xxx

jazher profile image
jazher

Thank you jules xxxx

jazher profile image
jazher

Just thought i would fill you in,

It went well and she wanted to know everything, She wanted me to go for weekly meetings for 8 weeks but i just cant get there, its 45 minutes away and andrew cant take all that time off and my mother in law is going in for a hip op next week so she wouldnt be able to have the kids. So she has put that on hold for now.

She has refferrd me to a physiotherapist who will come to my nearest hospital so thats good and she has gave me loads of things to read about pacing etc..

I am glad i went and she has gave me a number for a lady who will come and help me fill out my dla forms so i am going to do them as soon as. :)

I have quite a lot of evidance to send to dla now so fingers crossed.

hugs, kel xxx

MissKittycat profile image
MissKittycat in reply to jazher

Hi Kel, looks like it went good! Hope you manage to get your DLA sorted too x

wishing you a peaceful day!

Tracy

jazher profile image
jazher in reply to MissKittycat

Thanx tracy,

It feels like i have a bit more support. :)

I told her about this site and said to mention it to the support group if i cant make it.

She was really pleased that i get so much support from here.

Hope your day gets better hun, hugs kel xxxx

lynz profile image
lynz in reply to jazher

so glad it went well kel ,and glad you are getting help to fill the forms in hun ,cause they are awful to do ,

really hope you get it hun ,or even a little will help wont it .

hugs to you xxxx

jazher profile image
jazher in reply to lynz

Thanx lynz,

Yeah it did go well, i just cant beleive ther is more help for ME than there is fibro. Its quite sad and maddening.

I dont expect full dla as i can still get about, i just want a little bit of help so i can get a cleaner in once a week as i am struggling. Also my shower has broke and its so hard getting a bath so i need money for that too as i have nothing spare right now. :(

hugs back, kel xxx

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