Does anyone else experience Myoclonus... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Does anyone else experience Myoclonus jerking? Is it a part of FMS?

6 Replies
6 Replies

'dystonia or fibro' just answered my question for me. Cheers!

ah, ok Jules, I didnt know that! I look forward to reading the info!

LindseyMid profile image
LindseyMid

Yes, this can be due to Fibro, especially sleep myoclonus. But it should be properly checked out.

This is a good article from a reputable source on myoclonus:

ninds.nih.gov/disorders/myo...

Mdaisy profile image
Mdaisy

Yes. I have experienced these jerks too.... but not so much recently on this drug regime but certainly at the start.. x

I do get jerks were arms and legs jump, but I think Ive got dystonia as well my neck for the past few months has been pulling over to the right side nearly touching my ear my little finger is now permanantly bent, also Ive noticed my jaw wanting to go in a funny position

Elsbeth profile image
Elsbeth

Myoclonus Dystonia is horrid.

I am in the middle of being tested for this. I have had one EEG that came back normal but they have got worse so they now want to do a 48 hour one.

My jerks vary in severity but they are always visible to others.

I have punched my hubby numerous times through twitches. I hurt myself loads from hitting things. I drop things from twitching as well. I get the twitches in my feet, legs, back, neck, hands and arms. I also get the eye twitch which can be part of it.

I find that they are worse if I am concentrating on something. Watching TV, reading and using my PC. I also get tremors.

I had to (as normal) fight to get tested at all. You need to speak to your GP and ask them to be referred to a Neuro so they can arrange the EEG.

Good Luck

Els

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