Help: Fibro or long covid?

[Dodo21]

Hi everyone. I cought covid a month ago and since then I still have some sporadic cough and tight chest. But the most annoying thing is the extreme fatigue (and I am quite used to be always tired because of Fibro). I started to use my static bike again on Monday this week and my legs were very weak and heavy and after that I was dizzy and exhausted. It happened the same yesterday after a short walk. How can I understand if covid made Fibro worse or if I am experiencing Long covid? I have already booked a phone call with my GP but it will be in 3 weeks. Anyone here with a similar situation? Thank you in advance.

[Hazel_Angelstar Administrator FMA UK Staff]

Unfortunately it is something there might be no actual answer to. I'm in same position - since having covid last December I have struggled with increased fibro symptoms, especially fatigue and fibro fog, and also dizzy spells

[Dodo21 in reply to Hazel_Angelstar]

It is exactly what is happening with me. Did you manage to speak to your physician and have some advice? Thank you. X

[Sal0712]

Hi there. I had covid back in April and experienced the same symptoms. I have been prescribed an inhaler as my GP thinks I’m having what’s called bronchial spasms. The pollen was irritating my chest causing it to tighten, plus when I go from a warm house into the cold outside (or into the ice arena) this also causes my chest to react. The inhaler has helped but doesn’t give me total relief. I’m also finding I’m having to nap in the afternoon, or go to bed earlier as I just can’t stay awake.

[Dodo21 in reply to Sal0712]

Thank you for sharing your experience. I am using my husband's inhaler when I have an onset of cough and it definitely helps. Xx

[Hidden]

My fibro symptoms increased after having covid last December. It was quite scary actually how my fibro went from bad to worse and I did not bounce back. However, it prompted me to investigate why covid did this. Covid can attack the nervous system and fibro is a nervous system disorder. Over the past 30 years with fibro I have continually searched for answers and relief from this condition and the covid episode made me search much harder. Last month I started a program that has changed my life dramatically and I see beautiful light at the end of the tunnel! I am treating the root cause of the fibro and it is working! Relief at last.

[Dodo21 in reply to Hidden]

What program? Can you tell me more, please? Thank you. X

[Hidden in reply to Dodo21]

I was encouraged not to share on this form and to stay anonymous but I want to share this so contact me at [e-mail].,

[Mrdiagnosis in reply to Hidden]

Why would you be encouraged not to share this information if indeed it is "life changing" ? There are many, many people who are struggling day to day with this awful condition who are desperate for SOMETHING to help them ! Not good announcing this then denying it unless they contact you directly. I hope that this isn't a scam because people are vulnerable.

[Hidden in reply to Mrdiagnosis]

I guess we have a misunderstanding.....this site Healthunlocked discourages the exchange of personal info as i got a reminder when I tried to share some of the information. So I can't share on this site Mrdiagnois. However, as you may notice I did share my email address and if I get a notice form this site of doing wrong so be it ! I have been suffering form fibro for 30 years and am feeling badly that my wanting to help has been taken in a wrong context. No good deed goes unnoticed I guess. Feel free to contact me if you would like to learn more FREE OF CHARGE.

[Mrdiagnosis in reply to Hidden]

There is no way, no way on earth that this site would stop you from telling people about a possible cure or amazing insight into new treatment for FM. The language your using and the way you express yourself in your words seems to be of foreign background as your English isn't correct .

I'll leave it at that as I don't believe this is a genuine account. Thank you for responding.

[Hidden in reply to Mrdiagnosis]

I am Canadian, first Nations Canadian and sorry for not speaking the Queens English. Just hopeful that your bitterness and rudeness will not stop others from wanting to know more. II guess some people like being sick . Also check the rules for this site. I would have imagined that you would have already known that what I am saying is true concerning this site. These very rules are the reason why you are anonymous Mrdiagnosis

[Mrdiagnosis in reply to Hidden]

Rubbish.

[Bonny1234]

First of all I can not believe you have to wait 3 weeks for a phone consultation? Omg that's surely wrong in so many ways , as for fibo and long covid I was told at long covid clinic having covid does make fibo flare up much worse however it should not last more than a week if longer it could be long covid , I got covid way back when it first happened and was very very ill I am still struggling 2 years on with the effects after effects . Hopefully you feel better sooner than the disgraceful 3 week wait to speak to a doctor.

[Dodo21 in reply to Bonny1234]

Thank you and I am sorry to hear you are still struggling with long covid. Did they give you any helpful advice at the long covid clinic? Xx

[catherine19611 in reply to Bonny1234]

I had to wait 4 weeks for a phone consultation

I had a reaction to the vaccine in may 21 where it has left me only being able to do approx 20 minutes a day of normal daily activity on good days and bad days all i can do is sit or more usually lie down all day, and this can go on for 3-4 days at a time

[Dodo21 in reply to catherine19611]

I had a bad reaction to the third jab as well. Horrible aches for nearly a week, I could barely leave the bed.

[Bonny1234]

To be honest not really , they told me numerous times long covid is new and we really don't know much about it , I was seen by a nutrition assistant for healthy eating , then a dietician as I'm over weight , they gave me a tense machine and also links to yoga on YouTube , honestly nothing that my GP hasn't suggested, they did say stress plays a massive part on how we manage fibo , sorry if that's not what you wanted to hear about covid clinic I was really disappointed with it .

[Bonny1234 in reply to Bonny1234]

Perhaps it's the area you live ? I'm in Scotland a village outside Glasgow and we get a call back on the day we call and no later than following day.

[Yassytina FMA UK Volunteer]

I did take awhile too lose Covid symptoms and a few weeks before I felt abit more normal ,just built up gradually , Would 111 give you any advice ,3 weeks is along time too wait x

[Dodo21]

The cough and the chest tightness are getting a little bit better. I am still very tired and the pain is always bothering me. I suppose it is happening because I am not moving and exercising much. Unfortunately, I don't think the 111 or the GP would help much with that. As Bonny1234 said above, even at the long covid clinic where she has been referred, they just gave her the usual advice we all alredy know (diet, exercise and avoid stress). Xx

[Chrisbel]

after my first bout of covid, it took me two months before the extreme fatigue started to ease, so my advice is to take it easy for a couple of months or until the feeling of having no energy eases, and then start taking small walks and build up from there, no point in pushing it while the virus is still making you tired, it will just make it take longer to recover