I have at long last found a preventative treatment that is helping with my chronic migraines. I still have a headache each day but the severe migraines have reduced massively.
However my fibromyalgia symptoms as a result seems to have got an awful lot worse. The last 2 weeks I have felt severe fatigue, pain all over my body especially my neck, arms, hands and hips. I’m stiff all over, had a flare up of my ibs and am really struggling to walk far and do my everyday tasks.
Has anyone else experienced a flare up of their fibromyalgia once they had their migraines under control?
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PurpleTranmere
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Hi, maybe your just feeling the fibro symptoms a little more now you have got the migraines under control? One pain will always over ride another pain imo. I guess you may have felt the head pain more?
Thanks for taking the time to reply. It’s rubbish isn’t it you get on top of one type of pain to be replaced with another. I guess for me though nothing is as bad as my migraines were.
Migraines i find are the worst pain i get, mine are more sporadic though and since fibro are accompanied by intense neck pain. It is a case of waking up and see which part of my body is going to turn me over for that particular day. Nights are also the same, dont know how my body is going to react to bed and sleep! Oh the joys Hope you find a balance
Migraine pain is definitely the worst for me too. Your experience sounds very similar to mine you just hope it’s not going to be your whole body that hurts 😢.
it may be simple coincidence that your flare up tied in with getting your migraines under control. Whatever the reason, hope your start to feel better soon xxx
I have tried so many preventative medications including two of the CGRP treatments but none had any real effect. I’m now on candesartan which I have been taking for about a month. My severe migraines have decreased from around 10 days a month to 3. I’m on 8mg currently but am due to increase it to 12 mg today.
hi I just wanted to ask you how the Candesartan affected your BP and HR, I have started on this but already have low BP and a high heart rate. It’s made my BP lower but I feel may have had a positive effect, which baffles me. I too have been put on it to help with my chronic migraines, sorry just saw this after I wrote my post 😊
I have low blood pressure too but I didn’t find that the candesartan affected my blood pressure. I am no longer on this treatment but it was the only preventative that helped reduce my migraines for a few months. Hope it works for you.
When I was put on the CGRP Injector my IBS flared and I know now it is a common side effect. I also seemed to have worse fibro which I put largely down to being well enough to notice other pains more if you know what I mean. All this subsided with time anyway.
Thanks for your reply. I think you are probably right when you have severe migraines you are not as aware of the fibro pain. Hopefully it settles down for me too. Hope your migraines are now more manageable and you are not in too much pain.
Hi. I was diagnosed chronic migraine back in 2015. I was given Ajovy last year and it’s been amazing. I’ve gone from constant headache and 3/4 migraines a week to episodic headache and 3/4 migraines a month.
I have been suspecting Fibro over the last couple of years but after a migraine back in March my symptoms became permanent. I now have daily pain and fatigue, have not been at work since then and now looking at losing my job in the ambulance service as I couldn’t manage a couple of hours let alone 12+! It’s hard to adjust to your “new life”. I’m 48 and now looking at retirement which is so sad.
Anyway, I send love to you all and pray that one day we can all feel well again xx
it’s so hard isn’t it to adjust and accept how your life is when you are in so much pain and fatigued all the time. I really feel for you having to leave a job that you have done for so long. I haven’t worked in the last few years mainly due to my migraines as I wouldn’t have been able to get through a week without being off ill.
I hope your pain eases and you are able to cope with the massive changes to your life. x
yes i have also terrible flare ups same as yourself,my hips legs arms fingers back of neck an the side of my face,i have lots of pins and needles throught all in the last 2 weeks an ive started to get migraines also i went opticians they gave me glasses which helped a bit but my headaches are always there,thats wot it feels like its horrible syndrome to have hope you get some relief 😢 😊soon its a constant pain path ,i take8 diffrent pills they have been great an was feeling like i was starting to heal inside my body an my head.
Finally found routine that was giving me hope ,but my fibro diverted an kicked right off there's no warning impossible to predict sometimes;( but in places i never felt b4,im waking up up to 3 times during the night in agony so at th moment im so tired an narky ,got a docs consultation at 9am uk time going to see if we can try different options ,as im wakinh up in pain an its been since i woke in the night keep being strong an hope for sonething in the now an the future erratically be able to cure or ease this terrible affliction that has landed upon us bless u my friend keep going 😀 👍 x
for anyone with migraines, please try magnesium malate. Mine disappeared almost overnight after having them for over 20 years, I also had constant headache about 14 days a month. You can take around 400mg per day but I only needed 200mg and make sure the magnesium is elemental and not what the size of the tablet is. eg each serving (1 capsule) contains 200mg of elemental magnesium (50%) NOT 1000mg each capsule.
Great your getting your migraines under control, they are just the worst pain aren't they? Always found when my migraines were bad, that was the only pain I had. Its as if your body/brain only allows you so much to deal with at the one time so the most painful is top of the pile if that makes sense. Hope everything settles down for you soon 😊
Yes they definitely are. You are right that when you have migraine that you can’t feel the other pain as it is always the most intense. Thanks 😊 hopefully I will feel brighter soon.
hi, im so pleased youve found something to control the migraines, ive had about 3 in my life time, 1 in particular was horrendous, i can't imagine suffering every day, must feel like you want to drill a hole in your head just to relive the pressure, over time the research suggests something happened and its your bodies responce to tence up to protect itself, so stress, upset, divorce, death, many things can trigger, until recently i couldnt pin point a flare up with an upset happening, maybe a coincidence but something happened in my life that was very negitive and very upsetting, almost immediately i had a flare up, i try and do things that make me happy & try to keep myself as stress free as possible, but sometimes no matter what you do, shit happens, if theres nothing you can do about a situation, try and do what ever calms you, when i can i find going for a gentle walk somewhere quiet and relaxing .
I’ve definitely felt like I wanted to drill a hole in my head I often joke with my family that I want a completely new head. I find stress is a big trigger for my migraines as well as my fibro. I’m trying to get out daily to have a walk just finding myself getting slower and slower due to the pain. I’m sure it will get easier when I’m over this flare up. Hope you manage to stay positive.
I am taking Candesartan which is a blood pressure medication also used to prevent migraines. I have tried so many preventative medications before but this is the only one that has helped me. Hopefully you find one that works for you.
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