Medicinal cannabis : My consultant... - Fibromyalgia Acti...

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Medicinal cannabis

Duffy2021 profile image
13 Replies

My consultant suggested using medicinal cannabis, but it is very costly. Wondered if anyone has tried vaping cannabis oil?

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Duffy2021 profile image
Duffy2021
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13 Replies
Aishahb5364 profile image
Aishahb5364

I haven’t tried vaping but I do use CBD oil. I use (pm op for link) It doesn’t stop the pain but it does reduce it. It is expensive though. Do your research and go for one that suits you.

NavyWave profile image
NavyWave

Dear Duffy2021,I’ve been vaping cannabis oil for 4 years to relieve pain and to help with sleep!

You’ll want to get INDICA (for sleep, relaxation & pain)

I also take CBD Drops 925-1000 mg/ml every day!

With trying different options… I’ve found that having a nightly routine helps me wind down & helps with pain relief! If you have children they should be in bed, so you can pamper yourself without interruption.

Hope this helps with your decision making!

💕🙏🏻from 🇺🇸

Susan48 profile image
Susan48 in reply toNavyWave

We're do you get the cbd drops?

NavyWave profile image
NavyWave in reply toSusan48

I live in The States…… here, they are available in supermarkets, Cannabis Dispensaries and online! Just Google it! Make sure to get at least 925mg/ml

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

have a look at project twenty21 as they are doing an observational trial.

Duffy2021 profile image
Duffy2021 in reply todesquinn

I have heard of project 21, are you or do you know anyone who is being treated by them?

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply toDuffy2021

Quite a few and have spoken to both the project and some of the clinics. Will hopefully be sharing the recent webinar I participated in with sapphire clinics yesterday.

Duffy2021 profile image
Duffy2021 in reply todesquinn

I am currently waiting for an appointment withh rheumatologist as I have recently had a positive RA factor with raised crp/esr as well as fibromyalgia, do you know if it is helpful for RA

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply toDuffy2021

The evidence is not of good quality compared with other medicines and addresses symptom alleviation as opposed to condition specific. Anecdotal reports suggest it can help with chronic pain but systematic or trial based evidence is not there yet. I have heard figures of 1 in 20 being helped.

Murpy profile image
Murpy in reply todesquinn

Look forward to seeing this. Thankyou

Spoonielady profile image
Spoonielady in reply toDuffy2021

Hi there. I'm currently participating in Project Twenty21. I had a video appointment with a pain doctor and he is prescribing me a cbd oil with thc. It will be a couple of weeks until I receive the prescription but I'm hoping it works as I've been on long term pain meds for 10 years and coupled with all the other toxic medicines I'm on, I'm not seeing it as sustainable. The meds are damaging to the liver over time. I have RA and Lupus on top of fibromyalgia so I have to get bloods done monthly due to the medications.

Jojo-Rees profile image
Jojo-Rees

I have tried the shop oils which did nothing for me so now purchase elsewhere if you get me and they work really well. Also edibles from the same source as shop bought again do nothing. I don't know if it's just me and my high tolerance to medications but shop bought just seem like the shops make us believe its something amazing to help but to me its money spent on nothing.

Poohcrane profile image
Poohcrane

It really does help the pain and for calming head and muscle spasms. Can help with sleeping too.

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