Help with pain : Having a bad time at... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Help with pain

Davemayhead profile image
7 Replies

Having a bad time at moment my whole body is screaming at me to stop but if I fo who pays my bills the only day I will be able to stop is when I'm in my box . There seems to be no help out there for me so just keep pushing on this has been the case for the last 7 years

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Davemayhead profile image
Davemayhead
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7 Replies
Yassytina profile image
YassytinaFMA UK Volunteer

Hello. I think we totally understand your frustration s of daily life pushing to work threw another day and feeling where do I go from here, fmauk .org has online information and also a helpline to speak to someone, is this a road you have gone down yet ? Ways of looking to get help and even reducing your hours , just a thought .

ExhaustedAngel profile image
ExhaustedAngel

Are you on PIP you may qualify for some benefits xx

Dbry profile image
Dbry

Yes I understand how hard it can be. I have been in the same situation for nearly 15yrs. Working through the pain and exhaustion to pay the mortgage / support my family. I find life outside of work is very limited as I am mostly recovering from work in order to be able to go back the next day / week.

A side from winning lotto what else can we do?

I'm in Australia so no disability support for fibromyalgia.

Sorry to not offer a solution, I don't think there is one, but you are not alone / I feel your pains.

CheetieCat profile image
CheetieCat

Sorry no solution from me either but plenty of empathy, you are definitely not alone!

It's blinking hard though isn't it?

I do think there will come a point when our bodies will take the decision out of our hands and make that decision for us but until then I'll keep plodding on .......

Davemayhead profile image
Davemayhead in reply to CheetieCat

I know you are right I have always said I will keep going till I drop and I don't think I am far away from that I'm an engineer and need my hands and they don't want to do what I ask them too

CheetieCat profile image
CheetieCat in reply to Davemayhead

Yeah cognitive issues are a nightmare! If I'm not dropping fumbling or batting something about I'm falling over the bl**dy thing! Used to chastise OH for being clumsy😳🤣🤣

SlothMode profile image
SlothMode

Hiya Davey,

We are all experiencing the same sort of stuff and you just have to remember that you're not alone. A phone call to the CAB might be able to give you some advice on benefits you could apply for. PIP is one benefit I'd recommend might help a little.

🤗😊

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