New one

[damag]

i have just clicked onto this for the first time....reluctantly....

[desquinn Partner Volunteer FMAUK Trustee]

not sure what you are asking or saying?

[LoneEra]

Hi damag, welcome! It’s one of those clubs no-one wants to be in for obvious reasons, but the forum is a great support! Are you newly diagnosed with fibro? Or diagnosed for a while and just new here?

[Deeb1764]

Its awful when first told you have it but a forum can keep you sane and also ask questions and get answers from people who understand it. You are not alone with it even if you think you are.

[Dizzytwo Moderator]

Hi there and welcome, a little more information would be helpful to our members to reply to you in a useful and constructive way 😊

Also you may like to think about locking your post to our community for privacy reasons. Its not a rule to lock your post but I always recommend it. If you need help with this or anything else please just ask.

Momo

[i_citizen]

Hey, me too. Hope you're bearing up.

[Makie-Uppie]

I have posted a few comments and I know how you feel. You feel as if you are admitting some you really don't want to. If you don't admit it will go away and things will go back to the way things were before this 'b word' hit you and floored you. It's a bit like any chronic condition you have to acknowledge it fully in order to start fighting it and understand you are in for the long haul. It is good on here, so far, I have met some nasty people online, trolls is an understatement, but so far things are good.

[caico]

Presumably because you have fibro and you don't want to admit it's real? Unfortunately it is and we are a forum that has it and know exactly what you're going through. So tell us more as one of us is always listening - really

[saluhouse]

Hello damag. I’m sure everyone on here understands your reluctance to accept your diagnosis. It is very hard to get your head around a chronic and long term condition.

Even now - after many years - I still feel I’ve wandered into the wrong waiting room. It was not on my radar as my plan for the future.

But - and this is just my opinion - until you accept it you can’t start to treat it. Lots of the stuff that helps (eg diet/pacing/stretching etc) has to be generated by yourself. Especially if, like me, you can’t tolerate the medication offered.

There are lots of people on here who can help by suggesting ways to manage your symptoms. But ultimately - it’s still pretty much down to you.

Good luck! Xxx

[Pain_delight888]

Hi everyone!I hope your all feeling good today? I know what your all going through and its tuff!!!

Anywho.....

One was at the pain clinic i don't sleep at all at night with the pain feel like i have done ten rounds with Mike Tyson!!

So they have prescribed me Gabapentin Tilled 900mg at night!

And I am sleeping right through the night! We need our sleep for out mental health! So I do really recommend this it is helping me so far! Just been a week so fingers crossed kids!!

Love to you all.

[Mac16]

Hello Damag. I was diagnosed with fibromyalgia and CFS in 2019. This is my first post here. Reading the posts/contributions from this wonderful group of people has really helped to keep me sane over the past few months. Acceptance of our chronic painful illness is so important and I only reached that vital realisation lately. Every day brings its new challenges and being able to express that here is a wonderful gift. Thank you everyone for sharing your stories and journeys. I feel truly blessed to be a member of this group. Warm regards. Maria

[Midori]

Welcome to the Fibro Club, the one nobody wants to join!

Cheers, Midori

[Lewis7777]

You will feel supported here , I feel your pain no one wants to have to finally deal with the fact that they have fibro , but when I read some of the comments and suggestions I sometimes look at things in a different way . I'm sure you will find the group interesting , welcome x