Changing Minds about Fibromyalgia

[fleavitt11]

Currently, fibromyalgia is viewed as a condition and not a disease or not a legitimate disease. Because of these assumptions, many disadvantages have accrued. Looking at fibromyalgia with a somewhat different lens, we found that muscle pressure may be a surprising cause of pain in fibromyalgia. The following link helps unlock some of the mystery surrounding causation.

See: sites.google.com/view/muscl...

[desquinn Partner Volunteer FMAUK Trustee]

Its a nice theory but it is just that. What about the epigenetics cytokine theory and il6 and il8? What about the mitochondria or ATP theory? Or what about the SFN approach?

Its all good and well hanging your hat on one theory but unless it is replicated and substantiated by multisite trials to test it to destruction then its a theory only.

sory, meant to add that I also do not agree with the disease / condition characterisation but would concede that clearer aeitology would help patients.

[Inthepark]

I truly believe that this is something to do with the brain and amplified pain signals hence none of the pain meds work well not for me they really do need to do more research .

[desquinn Partner Volunteer FMAUK Trustee in reply to Inthepark]

The best current theory does support this but still more to learn.

[Taylor68 in reply to desquinn]

Fibromayalgia goes far back has in the bible and when Job was around .There is a scripture about it .

[desquinn Partner Volunteer FMAUK Trustee in reply to Taylor68]

Like attributing it Florence Nightingale the Job reference is just a post event attribution so could have been something else. But the research into this condition started in the 1600s after Guilliame de Baillou defined rheumatism.

fmauk.org/latest-news-mainm...

[MrsMouseSJ]

Who is 'we'?

[Dizzytwo Moderator in reply to MrsMouseSJ]

Hi there MrsMouseSJ , could you add more information to your question. Who is "we" on its own is not making much sense I'm afraid thank you.

Momo

[desquinn Partner Volunteer FMAUK Trustee in reply to Dizzytwo]

Think it relates to this statement "we found that muscle pressure may be a surprising cause of pain"

I also found the use of we strange.

[Dizzytwo Moderator in reply to desquinn]

Thanks for the clarification Des 👍

[MrsMouseSJ in reply to Dizzytwo]

That's exactly it. Thanks for clarifying desquinn.

[LoneEra in reply to desquinn]

I think the OP is one of the researchers who wrote the original paper. So I presume “we” is the 4 authors: jrheum.org/content/48/4/598

[Dizzytwo Moderator in reply to LoneEra]

Ah thank you, I did read it when first posted and noted the similarities in the names. But still don't understand the post just "We" I can't see the connection of that one word with the OP. Or maybe I'm having a fog moment lol

[LoneEra in reply to Dizzytwo]

The OP is describing what he and his colleagues found in the study they conducted (assuming my earlier comment is correct). So it’s kind of short for saying: “I did a study with 3 colleagues and we found...blah...”

Hope that helps! x

[Dizzytwo Moderator in reply to LoneEra]

Hi LoneEra, The We I was refering to was not by the OP but MrsMousesj but it seems Des Quinns reply was what they were referring to. I just thought with a little more explanation all could have been made a little easier for everyone to see what they had been referring to. But alls well 😁😘

[LisaSnow FMA UK Volunteer in reply to LoneEra]

LoneEra, How do you know he is one of the authors? His deliberately promoting the article in 3 different posts had me think otherwise.

[LoneEra in reply to LisaSnow]

Well, I’m inferring that from his username. Unless the OP likes to copy the names of PhD grads of course! Who knows 🙂

[desquinn Partner Volunteer FMAUK Trustee in reply to LisaSnow]

This is part of the reason we like researchers to contact us first.

[LisaSnow FMA UK Volunteer in reply to desquinn]

I was in a lot of pain by watching the video of the pressure test administration. Hopefully a less invasive test will become available soon.

[Pbyllis]

That is very interesting thank you 🌷

[Furry]

Thanks for this, a very interesting read.

[JazzElvis1]

I’ve thought that the whole way through, but how do we get the right amount of oxygen back? There wasn’t any answers for treatment x