New diagnosis😬

[egm123]

Hi,

I have just been diagnosed with fibro literally 2 weeks ago!!!

I’m really struggling to come to terms with it.... it has given me a name for a lot of the problems that I am facing but I just can’t get over it. I’m 19 and this feels like a massive hurdle to overcome.

Any help or advise would be much appreciated x

[LoneEra]

Hey and welcome ☀️ It is scary being diagnosed with a chronic illness at any age, but especially when you’re so young.

But the good news is that having a diagnosis actually enables you to learn how to make things better for yourself - with a combination of meds, movement, mindfulness and a few other bits and bobs!

This is a good place to start reading about self help measures: fibroguide.med.umich.edu

The pacing module will be key!

I’ll reply tomorrow with a few more targeted ideas for you x

[egm123 in reply to LoneEra]

Thank you so much! Thank you for being so welcoming and for the amazing advice x

[Yassytina FMA UK Volunteer]

Morning, I can quite understand how difficult it must be at such a young age too digest your recent diagnosis, the forum is a good place to read post s ,we all try to support each other with empathy and sometimes some friendly advice along the way. I hope you have a supportive doctor that can guide you through this, some people use medication to help with pain, trial s and errors along the way , but getting some kind of relief can help us through our days. Not too sure if you work ? but if you can pace your body during the day a lot of us find this a big help as over doing things can cause more pain and fatigue, just getting the right balance for yourself , I found if close family’s/friends have an understanding of this condition they can be supportive , even if it’s a chat over coffee , or a friendly phone call, a little empathy goes along way, take things day by day and give yourself time to settle into a routine that helps you xx

[egm123 in reply to Yassytina]

Thank you so much, that’s very reassuring and just so nice to see that people understand and know what it can be like. I am really trying to challenge myself whilst looking after myself which is difficult to adjust to! I haven’t met with the GP yet I’m not even sure where to begin! Again thank you so much for your reply x