Have had M.E. for nearly 30 years

[MALC19]

Hi all. Im new here. I have had ME for nearly 30 years now before it was even seen in the media. I was diagnosed at National Hospital for neurology Queens square in London. I have to say that most consultants i have seen over the years just cant be bothered with me as soon as i tell them about having ME. There are just those few that do want to help so dont give up. I have been diagnosed with so many other medical issues too and am on so much medication now to the point of having to take different pills every 2 hours throughout the day. I have to say my favourite help is my TENS machine. I got it many years ago through the hospital pain clinic and i would be lost without it, it really is fantastic for pain so please try it.

I am happy to answer any questions that anybody may have.

I have to say though please dont give up.

[JayCeon]

Caution: TENS only if you don't get seizures... O.o

[Hazel_Angelstar Administrator FMA UK Staff]

Hi and a warm welcome to our community. Here you will find information support friendship and laughter too. You can find general information on fibromyalgia at our main website fmauk.org

Do you also have fibromyalgia alongside your me.

[MALC19 in reply to Hazel_Angelstar]

Yes i do unfortunately and other invisible (as hospital pain clinic calls them) medical conditions.

I also have Colitis, Sacroiliitis, osteoarthritis plus a few more.

[ALKT]

you may find the science for m e website helpful it is a far busier forum for all things m e related . also plenty of info into why the health service likes to ignore it. the rising number of people with long covid means many more people will find out out about m e the hard way thanks to decades of neglect .

[MALC19 in reply to ALKT]

Hi ALKT. Yes i joined ME association many years ago, they are always very supportive. After being diagnosed with fibro too alongside ME it was hard to get my head straight having 2 of the very similar conditions. To me they are both the same thing. I get a huge amount of symptoms and stiff spine is worst one alongside many night fevers.

I do feel for everyone with both ME and fibro but good to know we can all support each other especially as most of medical profession cannot be bothered with us.