Fibromyalgia Me

[Gshaw]

Hi for about 10 years now since after given birth I have been in pain, started off with shin pain then spasm in my thighs, my neck and shoulders are always in bad pain, then the anxiety started along came the abscess and skin problems I kept going to the drs and they would say nothing just blood test and they came back normal, I get head ache I have a watery itchy eye, no I have this pain in my foot it burns hurts to walk on I thought I must have arthritis the bottom of my back is so painfull like a dull ache hurts more if I just stand still I can hardly walk , finding life hard as a single mum of a 9 year old boy, my elbow hurts I feel like all i do is moan but i dont think people understand of how much pain I'm in. I'm very forgetful i have to write everything down, i even sometime cant get the words out of my mouth, I'm so depressed with it all been 9 years and I'm getting worse. I finally have a referral, so i dont no what will happen next. I take codean i cant say they really help but guess they take the edge off for like an hour. I wake up in pain last thing before bed I'm in pain. I never stop yawning what ever i do , clean school run ironing i have to rest up after . Will I ever get better if it's what I have or is this my life now. Its horrible to have somthing wrong causing all this pain but nothing coming up on bloods test , i just want a diagnosis so i can say what is wrong with me i feel guilty on a day to day basis that i should work or do more in the house but really i cant .

[Gshaw]

Hiya no they tryed giving me amitriptyline but I did not like how they made me feel so I'm just on codean for the pain, just fed up feel like I have no life. Thanks for your kind words

[Nooby]

Hi Gshaw

Like fibro188 says, if fibro is what you have, you go through a grieving kind've process for your old life. I'm a single parent but luckily, my daughter is 21 now, I was officially diagnosed 2 months ago, but in my drs notes, I've had it since at least 2011.

Now knowing it'll never get better (over the yrs, I always assumed I would) ive had to change my mind set, knowing I have to do things differently. On a day to day basis, pace yourself, dont try pushing yourself as you'll just make more pain or tiredness, take rests every now and then, if something needs cleaned and you just feel you cant manage, then do it tomorrow!

I too have many notes on my phone, as I can forget, literally seconds after a thought, or being told something. You will have good and bad days, flare ups are the worse, stressing about things will make you feel worse too, so maybe try some meditation or yoga, I find a Tens machine helps a bit too, some days I feel I could conquer the world, other days, I struggle to even get to the loo.

Speak to your drs about other medications as there are many to try, what suits one, wont always suit another.

I'm on crutches or use a wheelchair at times, and people look at me like I'm putting it on, I dont feel bad about it anymore as I know, I need them!! I also found myself apologising to others for my condition! Now I wonder to myself why, I apologised, for something I can't control, so please, dont ever feel bad for something you didn't ask for, it is a horrible and painful thing to have, and hard to treat!

I hope any of this helps, and please, dont ever feel bad for something you didn't ask for. There are many lovely people on here ready to help, and completely understand what you're going through with some great ideas or, just a sympathetic ear to listen.

Take care of yourself, sending gentle hugs xx

[Gshaw in reply to Nooby]

Aww how lovely , I need some crutches I was only saying that this morning I cant walk on my foot its burning the pain is so bad I was at the drs on monday that's when I got my referral I no somthing is wrong as I'm just getting worse I'm even put off to meet or date as I feel my body is 99 years old, I woke up this morning bad back foot hurt elbow hurting and I have to walk my boy to school every morning it's so hard isn't it, I'm so glad I found this page as I talk to family they dnt seem to care I'm sure they think I put it on I walk with a limp I cant sit straight, be nice to have a diagnosis so I no my self as feeling like I do having blood test all coming back fine I'm like well I'm not lieing . Thankyou for your kind words I think il be on here most days lol xx

[Nooby in reply to Gshaw]

Lol, I was glad I found this site too as for many yrs, I've had aches and pains and like you, all blood tests were coming back fine! Finally, I went to a pain clinic back in Dec, my consultant, who was amazing, went through a check list with me and after she said, you scored extremely high, my response was, yay, I won, she said, you have fibro lol.

Honestly, I felt relieved I had a diagnosis, but then was like, what does that mean, what do I do now!?

But then found out, a dr had diagnosed me in 2011 but never told me!?

The pains, aches, tiredness and brain fog are difficult to deal with, but only you, can determine what your body is capable with. Medication can help, but not always.

If crutches, or anything else, helps you, then use them, it's not up to anyone else what, you do, they aren't the ones having to live with the pains!

It is hard for some family and friends to understand as they dont have the knowledge, try talking one on one with them, explain everything, show them this site, show them it's not put on, it is real pain!

I too, on a daily basis, feel older than my mum, shes 86, and I feel much older, but I'm only 43! Try different things, cold, heat, things like Tens machine, but definitely your drs, we tend to feel like guinea pigs, but when we find something that helps, it's all worth it.

If you want to chat at any point, you can always private message me, I'm always around, mostly coz I'm in bed lol, but dont think you have to suffer alone, there is always someone to speak to on here.

I really hope you get your pains under some control soon.

Sorry for long post, it didn't seem so much in my head lol xx

[Gshaw in reply to Nooby]

Aww thanks so much will defo be keeping in touch, xx

[klr31]

Have you had your D, B12, folate, ferritin and thyroid tested?

Karen

[Gshaw in reply to klr31]

I have all blood test they have all come back normal x

[klr31 in reply to Gshaw]

Get the results to check yourself as 'normal' could mean anything. Also the reference ranges.

Karen

[Gshaw in reply to klr31]

I will thank you