misdiagnosis

[millyrose7]

the reason I have fibromyalgia is because of the following when I was 20 I fainted at a disco I was diagnosed of having epilepsy and started on medication I started having seizures so I went back to see the specialist who gave me more drugs as well as having seizures I was very poorly I was having upto 300 seizures a month for nearly ten years was toxic from the drugs I was on housebound for nearly ten years and told not to have a family in 1990 I was informed I hadn't got epilepsy it was the medication inducing seizures I had been misdiagnosed this was a shock I didn't do anything at first but then started legal proceedings this was to no avail my records went missing there was never any evidence of epilepsy the report the specialist received sed not diagnostic of epilepsy in 2002 I was diagnosed with fibromyalgia which has gradually progressed this has come from the trauma of misdiagnosis three years ago it came to light i have brain damage and ptsd my memory has been affected really badly and I forget things I'm now unable to walk due to fibro I'm in constant pain 247 I'm never going to be pain free as my central nervous system has been damaged I also suffer from sever depression because of misdiagnosis Ii still hurtvery never being a mum I believe the expert on my case who wouldn't say the they had been negligence even though there was never any evidence of epilepsy no one not even my parents knows how this has affected me I've suffered 35 years in total before misdiagnosis I lived life to the full I danced swam competively was in amarching band now im in a wheel chair when I gpo out because of the brain damage I cant take certain pills the other week I had to go to see about ect therapy but it was decided I wasn't well enough I was also told ill never be free of pain which I don't want to believe because ive had fibro over 20 years and the pain receptors and central nervous system have been damaged one day I will get justice I will also disclose I will mention fibromyalgia my heat goes out to sufferers kkep fighting use your inner strength believe in yourself you can survive this crippling condition I have to remind my self what I survived and I will fight the best I can for justice when I disclose I will speak for every one of you because until you have this you don't know what its like because im housebound I knit and crochet sometimes today my arms are like lead and I cant do it but tomo I may be able too please keep fighting the photo above is how the damage affects me took the meds in good faith

[skit]

I am shocked at the trauma of misdiagnosis has made your life so difficult and painful. Here on the forum we all know the frustration of Fibro even without taking pills not meant for us. Opinion on missing records means the GP/hospital are negilent anyway!

take heart millyrose you can express yourself on the forum anytime.

Gentle hugs

[millyrose7 in reply to skit]

Thank you the most upsetting thing is not having children x